Having CT to rule out lung cancer + a wierd symptom

[BOK2Bjan]

HI all - I have had so many "masses" here and there that haven't been able to be ruled one thing or another that it is frustrating.  I just had a PET scan rejected by Medicaid - not a big surprise, but I have the qualifying clinical picture were I to have any other insurance.  To my point here:  I have had two nodules in my right lung for some time that have not resolved, as well as enlarged lympth nodes in same lung.  The report says "malignancy cannot be ruled out".  Well, I'm finally getting another CT Scan, so I'm hoping to find out they've gotten smaller or something wonderful like that.

My lungs have atelectasis bilaterally and scaring.  Both lower lobes are about useless.  I have emphysema, COPD, Fibrosis, Pulmonary hypertension, the nodules, and chronically elevated diaphragm bilaterally.  What drives me as crazy as anything is my lungs and therefore rib cage, are so hyper expanded that it is hard to breath right some times.  I have sleep apnea and so sleep with a bi-pap machine with oxygen.

My wierd symptom is I think in my colon.  I thought it was my spleen, which has a large cyst, but an ultrasound showed that it has only grown a small amount and hasn't changed much.  BUT, the bowel that goes right by the spleen takes a fairly large curve there and that's where the pain is.  It burns and it doesn't seem to matter whether I've "emptied" or am "backed up".  My Systemic Sclerosis effects motility and also my narcotic meds don't help.  It has been hurting for months non-stop and I can't get an MRI nor CT scan due to cut backs in insurance, plus, it hasn't been enough years since my last colonoscopy, so I plan to try to see my GI doc and see if there is anything that can be done to see what's going on.  It's scaring me.  

I guess I'll face it after I see about my lungs.  I needed to speak out, as I don't have outlets much anymore.  Seems, the number of my "problems" is too huge even for my church.  I submitted a prayer request a couple months ago - mentioning a few of my issues, and I got an e-mail saying "you know, we edit many of our requests, and you might find that if you were more general in your request, you would get more people willing to pray for you.  Also, if you wouldn't mention names (my children - known to all) . . . "  I was dumbfounded.  When I read other prayer requests - they mention specific organs and surgeries etc., with names and symptoms if its medical, and mine was no different - it just had more issues.  So, you see, I've become too much for everyone and am to keep my mouth shut.

Sorry, but I'm feeling a bit sorry for myself I guess.  I don't want to admit it and I know God is watching over me and listening, but I thought my church, which I've given my life in service to Christ for over 20 years, would be more caring.  I think I am just too messed up for people to handle.

Thanks for letting me "talk" to my fellow MS sufferers.  My only MS problem right now is my legs, right arm, numb toes, and cognitive issues.  So - not too bad.

Blessings to you all, Jan

[Deb61]

Been thinking about you . . . How are things going for you?  Been keeping you in my prayers . . .

Deb

[grannyhotwheels]

So very sorry you are going through all of this and then for your own Pastor to treat you that way just baffles me to no end... I will definetely be praying for you and also I will add you to my church prayer list... Hang in there honey and please keep us posted...

I'll be praying,
Carol

[Deb61]

My prayers will go out for you.  I am so sorry that this has happened to you.  It is odd that someone in your church has blocked getting the message out for prayer request, but there's lots of us here on the forum that will see to your prayer request here.  

Hugs to you and many, many prayers for you for strength and healing, Sweetie.

Deb

[Guitar_grrrl]

Good thoughts headed your way.  Scary stuff on top of MS!  ((((Jan))))

[BOK2Bjan]

Thanks Quix - I needed a kind word.  Yeah - pretty weird.  I think people just don't know what or how to respond to someone with so much going on.  But to say what he said - (and he was the pastor for family care ministries!)  Anyway - thanks, and I'll let y'all know how my CT scan goes.

Blessings, and glad to see you active on here again.  Jan

[Quixotic1]

Oh, Jan, I'm sorry that someone from your church saw fit to write you such an uncaring note.  Surely, you don't have to "qualify" to have people pray for you!  

I hope you can get somewhere with your problems and need for diagnostics.

Good ripples,

Quix