Hello all,
I feel like I've been searching for years, which truly has only been a few months.
I am 34 yrs old, and I have not been diagnosed at this time, but my current Neurologist specializes more with seizures and headaches, and now my symptoms are starting to change more drastically. So she finally agrees it would be best to send me to someone that deals with MS,Fibromy. and etc... here were I'm located according to the NMSS there are no doctors that work with MS patients. I would like to get a second opinion or just an opinion and some meds to help the symptoms because at this time I have been off work for 3months with no diagnosis.
I have had MRI,MRA, EEG, EMG, Cerebral Angiogram, Spinal Tap, and every single test has come back negative. But my symptoms continue on, they all started last summer 2007 I noticed I was having more frequency of headaches, and then was unable to control my bladder more. And I began having to wear a poise pad to help out with the accidents, but I just dismissed, and kept it to myself. Then by fall, I was experiencing numbness in my hands and legs, but with me being diabetic, I just figured it was the beginning of Diabetic Neuropathy. By Dec. of 2007 I talk with my Primary Care and Endo. and explained my concerns, but now I was having really bad mood changes that started to affect my family life, going through periods of isolating myself from others and just spending time alone crying for no reason. My doctors both start the process of getting some testing done, just lab work.
On Jan. 28, this year I experienced a severe headache with chest pain, where felt as if something was just sitting on my chest, along with complete numbness on my left side in both my arm and leg, and was hospitalized…they thought I was having a stroke, but my heart and brain all was fine, I don’t have high blood pressure or high Cholesterol. I took a stress test, Cat scan of my heart and brain everything was normal. I was hospitalized for 3 days due to these symptoms. Went to Neuro. she that figured I had a sensory stroke, from my neuro test i flunked there in the office, and all the signs sensory trouble (left side weakness, vertigo, balance way bad, trouble swallowing... things I hadn't even noticed) since most of them was affected and still are in way or another... were does the itching come from, and benadryl doesn't work, I just scratch like something is on me.
Since, that time I have been experiencing episodes or seizures were my teeth chatter and just maybe one arm will shake. I also have quadriplegia paralysis episodes at first those were just effecting the left side of my body both arm and leg but now it effects both arms and legs, to a crippling point were I can’t walk or move at all. These episodes last anywhere from a few minutes to almost an hour, along with seperate episodes of facial numbness (maybe my both side of my face or just the left side with extreme eye pain) where at times I’m unable to speak. I currently use a walker or a cane to get a around, and some days, I don’t need either, but since we don’t know or are unable to tell when an episode is coming we always keep something with me at all times.
Needless to say that since Jan. i've been back in the hospital 3 different times, but 1 thing we have noticed that whenever i have an episode I'm unable to hold my head up like i loose control of my head. And taking even a warm shower causes me to pass out into a crippling state. Since i did have an episode while at my Primary Care Dr. office we did notice that my heart rate shots sky high very fast, and my blood pressure elevates also, but being diabetic there is no problem with my blood sugar level, just in case your wondering I'm on a insulin pump so diabetes is under control.
Looking forwarding to getting back to normal quickly, being at home is killing me... and I can't drive either. c'mon
Vessel