MS & Dysautonomia

Just wondering if anyone has been dx'ed with MS & Dysautonomia.  From what I understand, Dysautonomia can piggy back on autoimmune diseases, like MS.

Thank you for your input-
Cathy

[sllowe]

Hi there,

Welcome to the forum!

I'm sorry I do not know the instances of autonomic dysfunction and MS.  But have you peeked at the Medhelp Dysautonomia forum?  We do have one - maybe they would know if our folks don't.

Are you getting a work up for this? If you feel comfortable to share we're all ears...

Thanks for coming our way!
-shell

[scootermom]

I'm glad I saw your post. I was dx with POTS 10 yrs ago and am now going through testing for MS. I haven't looked up the two together yet.

[Quixotic1]

Yes, it is possible, though not very common for MS to involve the autonomic nervous system.  I have read isolated case reports and have seen it mentioned as a possiblility in MS, but not much more.

Quix

[MrsAristotle]

My brother has had weird symptoms like me for about 4 years now, and they got really bad 2 months ago, terrible anxiety attacks and his blood pressure just kept going all over the place. One minute he felt warm then his legs were freezing cold, he had some pins and needles in his hands, and suffered from fatique.

Anyway last week he was diagnosed with Dysautonomia how mad is that, and here I am with possible MS. I know it isnt what you asked but our family have something going on neurolgoically and in the autoimmune department so it seems anything goes for us.

We have had:

Peripheal Nueropathy
Parkinsons Disease
Lupus
Cryoglobenimia
Sarcodosis
Dysautonomia
M.E.
Possibly MS or Lupus
Endometriosis x 3

[Lucky4Luv]

I got diagnosed with MS at the end of 2008, just before losing my home. , I am now realizing undiagnosed celiac was the cause and only since going Gluten Free. Because of my life long anxieties...I just discovered Dysautonomia.  I chew down my nails and skin pick and used to be really bad at handling stress!  I feel I have learned how better to handle it and am trying to recognize myself and my subconscious through self hypnotism and self affirmations.  I am scared to bring any of this up to my neuro as I don't want to open yet another Pandora's Box.  

[sllowe]

Hi Lucky4,

You happened upon an old discussion. If you are comfortable to do so - copy what you wrote here, and add it using the post a question button so we can all see you, and welcome you properly.

I so glad you found some help through hypnotism and self affirmations! I understand the apprehension to bring up these things to the neuro, but if he or she is a good doc, then they will be glad you found some lifestyle changes that help you manage the disease.

The only thing that the doctor will not be in agreement with is celiac as the cause of your MS. It does not cause it, but those who suffer from allergies sure can relate to removing the allergens from their lives, and the quality of life that brings.

Thanks for joining, and see you around,
-Shell