My heart goes out to you dear girl. What a scary thing to have to be going through. I pray that you find out soon what is happening and know that we are always here for you.
I too hope that it is not cancer and something that is treatable. You are in my prayers.
Hugs
Moki
I only get fifteen minutes on this computer so I was trying to hurry and oops I forgot to sign off.
Catch you later!
Hope everyone is doing better!
Hugs and more hugs,
Torey
Thank you so very much!
It was so uplifting to hear from all of you.
I am feeling a little confident that the difference in size may be due to the difference in equipment, also. Also, the largest lesion which had not enhanced in October is enhanced now. I just tend to believe that it is a flair. Also, the lesion appears to have moved posteriorly from just the center to right lateral-posterior. Before it was centrally located, almost like a syrinx. But, further MRIs had ruled that out.
I know my spasms have become whole body now. Even the thump of the MRI throws me into a seizure like movement that just continues. But, the EEG was normal. The neuro actually said "darn" after having told me that he thought it would be normal when he ordered it. I think he just did the test to appease me. I insisted upon the cervical MRI. I am so glad that I did so, now. He thought that it would be no change. I told him that at least this way my lesions would be confirmed by another hospital and staff; and also, that there would be a baseline at the hospital where he has his office. Also, he is on staff at the other hospital with an MS center, so I thought that perhaps he could get me into it sooner.
He is not aware that I have seen the report. He simply told me that he thinks that my results had improved since the last MRIs. He said he justed wanted the studies on diskette so that he could compare them better (of course) and make sure that I was indeed improving. I asked him if I was in a flair or if the lesion highlighted. He said that we could not tell from that. That we had to compare the studies. I think he just wants to be sure before he leads me further down the wrong path.
I am thinking of trying to get someone to repeat the study at the hospital that I usually have them done, otherwise, so that a more direct comparison can be made.
I finally figured out that the thumping of the MRI machine was making my body spasm more. So, I had them put towels under me to help absorb the ruckess. It worked so much better.
So, either there is another back problem going on or I think my nervous system really is inflamed or underattack as the contrast seems to indicate.
Thanks to all of you for your support.
I am trying to find a list of applicable demyelination diseases such as MS or lupus, etc. that could be possible for a middle-aged female with prior biomedical and chemical toxic assaults. Also, I received some of the first hepativax injections that some in Europe are claiming as leading to MS. The studies have not showed a significance; but, I do not agree with the subject base and the manner in which the studies are being performed. But, who really knows at this point? I think that there are just so many factors involved. Have any of you had any genetic testing done for your diseases at any of the centers?
Did your insurance pay for any of it or was any of it done as part of a study or something? I am just curious.
Also, I do not feel that cancer would give me the relapses in how I am feeling and functioning. But, I really do not know.
Any input would be appreciated.
Thank you again for all your past and continuing support and prayers!!!
I am sorry to hear that you are having such a difficult time getting answers. When my first MRI was done the radiologist thought that I had PML, it is fatal in less than a year. My neuro disagreed with this dx and ordered the test on the spinal fluid to test me for it. It took two weeks for the results to come back. These were the worst days of my life so far, waiting for those results.
The tests came back negative and my neuro was right, I didn't have PML. I know from this experience that it can be so frightning when the radiologist or doctors are specultating on something this serious. Try not to worry until they get it figured out, because when they are just speculating, that means that they are looking at all different possibitities, and doesn't mean that you have any of these things.
The radiologist was wrong about my brain scan, and all of that worring I did was for nothing. It sounds like to me they don't really know what the dx is for you yet and they are just ruling out possible causes!
I will be keeping you in my thoughts and prayers, and know we are all here to help you get through this very scary and uncertain time!
Santana
My heart and prayers go out to you right now!! I can't imagine how you are feeling and I can understand you being scared. ((HUGS))
I can't really give you any medical advice, but maybe the difference in lesions is due to the different machines?
Also, as far as lesion size, I have 3 brain lesions ~ 2 small, "punctate" ones and one large 1.5 cm x 0.9 cm (or 15 mm x 9 mm) one.
I believe that I've read to be considered an MS lesion, it needs to be greater than 3 mm. Perhaps someone can confirm that.
When will you be able to take your MRIs to your neuro? Is it tomorrow?
Whatever happens we are all here praying for you right now and will be right by your side.
Take care and God Bless, Pat ((HUGS))
Torey,
you must be so scared at the moment. What an experience to go through, and particularly not knowing what exactly is happening yet.
Being thrown a curve ball of possible cancer is a big downer. Now they are going to look long and hard at what is going on and find you some answers. I hope an pray that it is not, but that whatever it is is is treatable.
You will cope, somehow, once you know what you are fighting against. Stay resolute.
Please know we are all here praying for you and pulling for you and ready to listen to you any time.
Hugs and Prayers
Sally