demyelinating disease MS HELP

[fountain1]

Hi,  I am a 22 year old female who is experienceing some weird symptoms that include: muscle spasms, seizure like activity, extreme fatigue, double vision at times, some numbness and tingling in face, arms and legs. I saw a Neurologist and he did a MRI and found a 7 mm demyelinated area and an adjacent area  of demyelination on my left frontal lobe. He then did a LP and did a drug test to make sure I wasn't "on anything" the MS panel came back negative and has now suggested that it may be all in my head.
  If anyone can give me some advice so I don't feel crazy it would be very helpfull I'm scared that he may be missing something. Thank you!!

[T-lynn]

Another defective neuro,darn it must be an epidemic,there's lots of that going on.

Find a neurologist that specializes in MS.Your local MS society can help you find one.

Heck yea its in your head,its visually on the darn MRI film.

Oh,cracker jack neuro's inferiate me

[SUGAR~~]

Unfortunately, you have to be your own advocate for your health care............ Take notes and keep a diary of your symptoms. This is very important!!! I have had the Dx of probable MS for over 9 years!!! The last several months I have taken a nose dive and still am having trouble with receiving a Dx. And most importantly, these Dr's are working for you!! Do not take no for an answer. If you believe that there is something wrong with you, then there probably is!!! Best wishes to you~~

[floridamom2]

That makes no sense "all in your head"!!  You have found something that could be the cause of your sx and need to go to a qualified doctor to find out what it is.  I have heard you can call the National MS Society to find a MS Specialist in your area.  Take that step and don't give up.  I am also struggling for a dx of my Symptoms and so are alot of us here.  We are behingd you in this fight for a cause!  If you are new here to this forum, WELCOME!!

Have a great Sunday!
Kristin

[JonM]

Seek another opinion, preferably at a teaching hosptial.

Yep, you doctor may be right, It could be "all in your head".  White spots suggestive of demylenization 'in your head" cannot be explained away by suggesting pycheosomatic (sic) causes.  Don't accept that ****...

[karzme]

My symptoms for MS started with double vision. I had it a total of 3 months. Made working and everyday things kinda hard. I have had all the symptoms you are describing. Remember some people with MS can have clear MRI. You could be in the very beginning stages.

Or it could be anemia. I've said this to others before. But anemia has similar symptoms to MS. I found out I had anemia at my 2nd ER trip. I would suggest getting a blood test for anemia. If you do have , it's possible to still have MS too. I'm not trying to scare you, just give you info I found out. If you can go to webmd and type in anemia. Read the symptoms and compare them to yours.

You could always get a 2nd opinion. I always recommend that, especially for something as serious as MS. But of course it all depends on how much insurance you have and what it covers. Don't settle for their answer!! If you feel it's something to worry about. Do so, but try not to focus on just that. You need a life too!!!

Does anyone in your family have MS or have had MS? Me I'm the only one in my family. Sometimes you hear it's hereditary, then you hear it's not. Very confusing. Anyways enough with the ramblings, I hope I can help. Remember we are all here to help and support each other.

Take care and up date us from time to time.