Interferons & Paresthesia

[kmunier]

Aloha! I have a question/concern, maybe someone can help my concern. One of my main symptoms is paresthesia. I am on avonex and I take the shots early in the evening and it doesn't matter what I do I am woken in the middle of the night with the paresthesia pains.They are all over and it seems to attack my hands and feet the most. I constantly have numbness in my hands & feet and am afraid these weekly shot effects could be disabling more.  I take tylenol before the shot than when woken in the middle of the night I take more. I'm taking Gabapentin for it and my Dr just prescribed Nortryptiline
Thank you in advance
Karrie

[sllowe]

Welcome Karrie!

How long have you had the parathesia and pain? The DMDs should not cause this - but the disease does.

I was prescribed lyrica for it ( I had burning too), but I chose not to take it. Not sure if that was the right thing to do, as it took months to simmer to  "tolerable."

Giving this a bump to see if others would like to share what they are using.
-Shell
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JG: I left you a welcome note, but seems I'm behind and you are already out and about around her! Welcome! - shell

[jaegergirl]

I have the exact same problem I have been on Copaxone and recently changed over to Rebif (Interferon) and the problem has only gotten worse. It wakes me several times a night. I also take 600 mg of Gabapentin 5x daily. It doesn't seem to help. I am beginning to think that the medicine is as bad as the disease it is so frustrating! If you discover anything that helps please let me know as I will you. Good Luck- JG

[kmunier]

Thank you!!!!!!!!!!

[jules2212]

Hi Karrie

I am sorry but i dont have an answer for you.
I want to bump this post for you in the hope someone will jump in with some great advice for you.

Sorry i could'nt be more helpful.
Best Wishes and Be Well
Julie x