ms meds

[petsrus]

So I am new to this. But I have had ms for 8 yes now. Optic nuritis 2 times loss of facial movement all kinds of things. I have been on Avonex and now rebif. I recently stopped taking rebif it was making me have a fever and just feel crummy. It's been 5 week s and I feel great.I'm concerned with not taking it I may have a large relapse. Iv changed my diet all natural food any thoughts on this?? Was thinking of starting it again but just don't want that feeling. Thanks

[petsrus]

This is all great info. Thank you guys very much. I will get back on my meds. And look into an oral drug. I found out today just how i feel when I am over heated. Wasn't nice.

[Corriel]

I took Rebif for a year and while I did not feel awful, I jumped at the chance to switch to Tecfidera.

Like ess, I had to back up and titrate back up to the max dose because of gastro issues but have been successful in making the switch from injections.

Not sure if it is the Tecfidera or just coincidence but now that I have managed the switch I feel more like my old self.

Corrie

[HVAC]

Here is what I was told when I was diagnosed with MS. MS progresses with or with out symptoms. So you can feel great and your MS is progressing. If it progresses and you get beck on one of the drugs you may not go back to where you were before the relapse you may be left with permanent damage. That is why it important to get on a drug early in the MS and stay on one. These drugs only slow progression they do nothing for symptoms. But slowing progression can help symptoms from starting.

If you do not take a DMD at all you are running a risk. Some people are willing to take that risk. If you ask people who have had MS a long time before the DMDs came out they would tell you it is no fun letting MS take its course. Steroids do nothing to alter the course of MS they just help with temporary symptom relief.

Alex

[petsrus]

Thanks for the words of wisdom. No I have not tried any oral drugs. The doc did mention the one u are on. I may try it. I know the stress can create a lot of my ms symptoms. Iv managed t get that under control. Thanks again

[essdipity]

Hi and welcome.

A healthful diet is good for all of us, with or without MS. But unfortunately there's no evidence that this gives us an easier disease course. I wish it did.

I get you about being really tired of the injectable meds. The interferons do have a lot of unpleasant side effects, though for me a preventive dosage of Aleve usually did the trick quite nicely. Since effects of Avonex would hit me a few hours after the shot, I'd do the shot before bedtime, take Aleve and go to bed. Whatever works.

Now, though, we have many more options. Have you thought about one of the oral meds? A pill sure beats a shot in my book. I started in on Tecfidera with the beginning dose and did fine, but once I got up to the regular level I had gastric effects that were pretty bad. I backed off and will start again more slowly in a couple of weeks when I get back from a trip. But I do want to be on something, given what I go through with MS. If there's a way to keep that at bay, I'm all for it.

You may be feeling quite good because you're not in a relapse, and if so,
that's a feeling you want to keep. Maybe Avonex and Rebif have kept you from the secondary progressive stage. I think it's taking a big chance not to be on anything, though others look at it differently.

ess