Hi all,
I just wanted to start by thanking everyone for the out pouring of support after my horror of a neuro appt. last Monday. After lots of tears and feeling completely hopeless I started to get angry which is good as it tends to motivate me into action.
So I booked an appt with my GP on Friday, armed with my symptom timeline (which the neuro did not want to see!) and my DH, I pleaded my case. She already had the neuro's report telling her my brain lesions are not significant and are seen in many normal people due to age or could be due to my migraines.
This is where I get proud of myself because I used one of Quix's questions and asked her if these "normal" people with brain lesions have all the neurological symptoms that I do. She looked thoughtful for a moment and then said good point and he (neuro) doesn't really have a good explanation for your symptoms either. Then I pointed out he did not do an mri of my spine or any other testing, so could it not be just as likely that my lesions are causing my symptoms as his assumption that they are not?
So things turned from there and she said she will refer me to the ms clinic out here as they would be better able to assess complex cases and may also have ideas as to what my problem may be if it is not ms. I was so happy because I was worried she was going to give up on me like my last GP when there were no easy answers.
My DH (not sure what I would do without him) expressed how he has watched me get progressively more debilitated and we need some answers and some treatment. I think that helped as did all the support from all of you and the great questions to ask.
So back on the medical rollercoaster I go. Only this time I am more knowledgable than before and hopefully better prepared for the ride thanks to all of you. Anna