so tired....wanna just give up alot lately

[mommabecky76]

I was diagnosed april 2013 im a 38yr old female.seems like i found out everything has just been quickly downhill since then.my left eye is basically 80% blind.i dont have relapses, im always sick and constantly in pain.they have me on copaxone daily injections,elavil,cymbalta,pain meds(feel like they do nothing) clonazepam. Not only am i always in pain and always terribly exhausted (due to i work my behind off at my job,then come home to a 2 1/2 yr old and 15 yr old )now im losing my voice on top of everything else and getting very depressed. I just wanna sleep and hide in bed.or im constantly crying, and i am not a crier,im pretty tough skinned.if any can help with suggestions,or advice, i am at my breaking point and could use all the support i can get.this is the first time ive told anyone any of this,just because im tired of everyone treating me like im gonna fall over and die at any moment.

[HVAC]

It took me over 40 years to be diagnosed with MS. I was pretty depressed after I was diagnosed. I had to go to a counselor. I then was sick for several years and was diagnosed with Ovarian Cancer. I have had a struggle with that I have wanted to quit a few times. I recently got a puppy to train as a service dog. Fiona like my Service dog Polly who is 12 was born deaf. It take extra to train a deaf dog. I think about her and her needs. It gets me out of my own head. Your own head is always the worst place to be for anyone. Illness is not fair. I did not think at 51 I would be fighting for my life. Who would have thought you could have MS Ovarian Cancer and the BRCA1 gene giving me a 87% of Breast Cancer. My doctor says I will get breast Cancer. I just have to be happy for what I have and live my life.

Alex

[Poppy7402]

I am so sorry to hear that things are so awful for you.  This disease is just not fair.  The fatigue on top of things does make everything seem worse.  

Had you thought of contacting your Neuro to see whether maybe a bit of tweaking on the medication front might help things??  You might also be able to trial one of the drugs for fatigue - Amantadine or Modafinil etc.  I've just started on Amantadine and it's made a huge difference.

Is there any way you can get some help on the home front too?  Perhaps the 15 year old could pick up a few jobs more jobs to help out?  Some payment might be expected by him/her but any help you can get will go some small way towards making things better.

Gentle hugs,


Poppy