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651074 tn?1248822567

Does this sound like MS or something else?

My PCP and Rheumatologist believe I have an autoimmun disease because Prednisone is the only thing that keeps my symptoms half way controlled.  However, I cannot seem to get a diagnosis.  I am extremely anemic, I have had onesided headaches for years on the right side only.  Which started as a headache, right ear ache, a few years a go I had recurring staph infections that are now gone, I have severe skin flare ups on my hands, my hands itch  and turn red and feel hot a lot.  I get these strange flare ups on my arms and back that bleed out of no where....the entire right side of my body goes numb a lot, clumsy right hand, weak right knee, purple marks that come and go on my knuckles and ankles, right side sore throat, tongue swelling, severly fatigued a lot...pinkys on both hands go numb, head, feels numb, cold sensation on right shoulder.....EMG normal except for carpel tunnel, MRI results did not show anything on brain but did show bulging disks in C-spine, the following is one of my blood test results.....
I almost always test low iron on blood test. I was given a strong iron supplement then it was too high =336 then back down, etc. Also, I am wondering what some of my blood test mean for example - MCV low - 71 (80-100), MCH Low 23.6 - RDW high 28 - Neuthrophlis 28 low (40-74) Lymphocytes 55 high (19-48%). My question is what are the possible issues and what kind of doctor should I be seeing? Also the only thing so far that makes all this go away is predisone. Arthritis profile normal....white blood cells are elevated on almost every test.   They have gone from thinking it was lupus, possible MS - these two are ruled out now my doctor thinks it is Behcets but does not seem sure.  I am wondering if I should also see a Nuerologist and a Dermotologist?  If anyone can look at this and give me direction I would appreciate.
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293157 tn?1285873439
have you had all the blood tests done...ANA, CRP, etc... it sounds like it could be so many things...

let us know how thing go

take care
wobbly
undx
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667078 tn?1316000935
Does not ring a bell as MS. Of course I am no Dr. Keep us informed of your progress.

Alex
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338416 tn?1420045702
I've never heard of your combination of symptoms.  It doesn't sound like MS, mostly because of the anemia, skin rashes, spontaneous bleeding, and tongue swelling.  MS is a neurological disease, so it will cause weakness, numbness, and paresthesia.

Behcet's is a definite possibility, from my brief skimming of its symptoms.
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