Myelodysplastic Syndrome Community
support groups
About This Community:

WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.

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support groups

I'm searching for support groups.
I need to talk with others about their treatments, what they have tries as far as
alternative treatments.
2 Comments Post a Comment
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Can tell you Vince that my husband has had this for 2 years. Doing treatments and one year ago he started on a clinical trial called clorforbine at the Huntsman Center. Has done very well with it.  
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My girlfriend was just diagnosed 2 months ago and is looking for people to talk to about this too. She is 56 years old and they have started her on Revlemed.  She is very tired all the time and very scared as well. It would be great to chat with you. I can email you her phone number if you would give me your email address.
Thank you,
Liz A concerned friend
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