I'm sorry to hear what happened. Indeed, this condition is not compatible with existence outside the womb. Some centers would offer therapeutic abortion (less than 20 weeks), however, the decision will depend on a lot of factor including your personal beliefs and religion. Regards and God bless.
i reserched all about spina bifida when my unborn baby was diagnosed wif it(exposed spine at the lower back & her head was unusually bigger in circumference due to retention of fluid in her brain as 2 sonographers rectified bcoz they could barely c any brain tissue) & i was already 21wks! All previous tests did not show any abnormal wif her.
i told myself i've to spare my baby from future misery i could never imagine(numerous surgeries immediately the moment IF she is to be born, a tube running in her head to drain the fluid, she has to live on crutches/wheelchair etc) n even if she can live tru all these, what if i left the world, who would look after her? so i decided to bear wif all the extreme pain of the loss of my baby. i still couldnt believe till today why it had happen to my baby. but if i had hold on to carry her to full term( which my DR says my baby might not survive within me), i was also afraid i will miss her even more so i decided to let her go. she never woke up from her "sleep", she was so beautiful with her ten tiny fingers and toes, which i will never forget.
every pregnancy is different as i tout to myself. its all up to u as wat do u expect.