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Burning and Partial Numbness
I'm a 45 year old male, and until 6 months ago in good health. At that time I began experiencing numbness and burning in a small area (about 2" in diameter) on my right thigh. Approximately one week after the burning in my thigh showed up I began having stamina and what seemed like equilibrium difficulties. I could get a good night's rest and an hour or so later I felt like the gravity had been turned up several percentage points. I generally felt like my body was collapsing in on itself. Going up stairs was a slow process and I didn't feel too stable. I did not have any headaches of fever during this time, did not have an accident, and wasn't knowingly exposed to any toxins or chemicals. The only other neurological problem that I've experienced was Bell's Palsy in the right side of my face nearly 20 years ago.
I saw my GP after the first month. He did some basic blood tests, including, CPK, thyroid and blood sugar. All results were normal. Two weeks later I was still feeling lousy, the burning in my thigh was expanding, and I was starting to get some burning in my right foot and the right corner of my mouth. My GP referred me to a neurologist and after a 3-week wait before I could schedule a visit my malaise subsided and I felt that the burning and slight numbness in my cheek might have been diminishing.
The neurologist conducted a basic exam and did an EMG on my right leg with normal results. He suggested a CT scan and more blood tests. All were normal. After a couple of weeks the burning and numbness expanded to other areas of my body. A MRI of my head was ordered as well as a B-12 and Lymes test. At that time, I was also placed on 900 mg/day of Neurontin. The blood tests were normal, as was the MRI.
The burning and numbness have continued to spread and are starting to effect my job where I need to do quite a bit of walking and driving. My dosage of Neurontin is now up to 2400 mg/day. I have a partial loss of sensation (I still can feel a pin or a cotton ball) in my checks, lips, forehead, and scalp, everything from my waist down, forearms and just last week my fingers started to lose some feeling. I have good days and bad days with my level and locations of pain. Occasionally my knees and hips ache so bad that it is difficult to walk, the burning in my feet reaches a level that it becomes hard to work the accelerator, brake and clutch. In some locations like my fingers, I never have had any burning, just loss of sensitivity. My motor nerves still seem to be working ok although, as the partial numbness moved into my hands, my ring and little fingers feel like they are swollen (as my lips frequently do) and it seems like they just don't want to work quite right. Although better, my stamina may be only 50 to 75% of what it was before this started.
Next week I am scheduled to have a lumbar puncture. While the analysis of the spinal fluid may reveal what is going on in my case, I seem to recall from a previous search of the archives someone with similar conditions. However, I don
I saw my GP after the first month. He did some basic blood tests, including, CPK, thyroid and blood sugar. All results were normal. Two weeks later I was still feeling lousy, the burning in my thigh was expanding, and I was starting to get some burning in my right foot and the right corner of my mouth. My GP referred me to a neurologist and after a 3-week wait before I could schedule a visit my malaise subsided and I felt that the burning and slight numbness in my cheek might have been diminishing.
The neurologist conducted a basic exam and did an EMG on my right leg with normal results. He suggested a CT scan and more blood tests. All were normal. After a couple of weeks the burning and numbness expanded to other areas of my body. A MRI of my head was ordered as well as a B-12 and Lymes test. At that time, I was also placed on 900 mg/day of Neurontin. The blood tests were normal, as was the MRI.
The burning and numbness have continued to spread and are starting to effect my job where I need to do quite a bit of walking and driving. My dosage of Neurontin is now up to 2400 mg/day. I have a partial loss of sensation (I still can feel a pin or a cotton ball) in my checks, lips, forehead, and scalp, everything from my waist down, forearms and just last week my fingers started to lose some feeling. I have good days and bad days with my level and locations of pain. Occasionally my knees and hips ache so bad that it is difficult to walk, the burning in my feet reaches a level that it becomes hard to work the accelerator, brake and clutch. In some locations like my fingers, I never have had any burning, just loss of sensitivity. My motor nerves still seem to be working ok although, as the partial numbness moved into my hands, my ring and little fingers feel like they are swollen (as my lips frequently do) and it seems like they just don't want to work quite right. Although better, my stamina may be only 50 to 75% of what it was before this started.
Next week I am scheduled to have a lumbar puncture. While the analysis of the spinal fluid may reveal what is going on in my case, I seem to recall from a previous search of the archives someone with similar conditions. However, I don
A related discussion, numbness stiffness extremities burning tingling sensation was started.
A related discussion, prickling skin, myoclonic jerks and some numbness was started.
Hi
Yes, I also experience many of the symptoms (tingling fingers, numbness in lips, slurring speech, twitches all over my body). I am just wondering whether this could be related to an infection? A year ago my symptoms started with numbness in my lips and teeth and difficulty speeking (slurred speech). It was also like I couldn't control my eyes, as if they were jumping. A week later I got a fever and two days later the symptoms disapeared. But two months later I started to get tingling fingers, pins and needles feeling and twitches all over my body. Now the symptoms come and go and sometimes I suddenly have problems pronouncing words (slow speech, numbness in tongue).
Anyone can help? Could this be an infection or should I see a neuro?
Yes, I also experience many of the symptoms (tingling fingers, numbness in lips, slurring speech, twitches all over my body). I am just wondering whether this could be related to an infection? A year ago my symptoms started with numbness in my lips and teeth and difficulty speeking (slurred speech). It was also like I couldn't control my eyes, as if they were jumping. A week later I got a fever and two days later the symptoms disapeared. But two months later I started to get tingling fingers, pins and needles feeling and twitches all over my body. Now the symptoms come and go and sometimes I suddenly have problems pronouncing words (slow speech, numbness in tongue).
Anyone can help? Could this be an infection or should I see a neuro?
My rt. foot feels like I have a tight glove on my fot with cnumbness coldness very uncomfortable feelingDiabetic 20 years cansomeone help me?
I am 52 yrs old. A few years ago, I was injured in a car accident - unfortunately this was only one of many (no I wasn't at fault). As a result I suffer soft tissue/nerve damage in the neck, arms, back and suffer with migraine headaches, along with a few bulding cervical discs. I have also had back pain and pain down my legs. A couple of years ago I started having a lot of leg pain with some burning. I thought it was the tile floor and was very careful to wear shoes...then I thought it was the long walks...then I blambed it on whatever I could dream up. Now the pain in my legs is severe with major burning on the front of my calves. The pain increases with excercise, standing, sitting. Lying in bed only relieves some of the pressure, not the pain. Often I can barely walk and my balance is off. The pain in my forearms has increased and I am having spasms in my jaws. Often I can not sleep at night since the pain seems to increase. Sometimes, not often, the pain will decrease for awhile, thank goodness, and then suddenly increase dramatically when I stand or walk for just a few minutes. My doctor has me on Neurontin (300 mg X 5 per day). Recently, I had a lower back MRI which was normal. I have decreased my blood pressure medication, Tenormin, without results. My blood work is wonderful....potasium, B-12, sugar, etc. Only my thyroid is off slightly (I was normal last year). Any ideas?
Hey my grandad has perfral neropthy 2 my mom is trying everything and going nuts she cant stand 2 see it happen to her father what do u recomend we do?
John -
Any update on how you are doing? I have just developed the exact same numbing/burning on a 2 inch patch of my right thigh too, so I'd be curious to get an update.
Any update on how you are doing? I have just developed the exact same numbing/burning on a 2 inch patch of my right thigh too, so I'd be curious to get an update.
5 years ago i was stuck over aperiod of just afew days with tingling in my figers tips .and then a burning tingling in my feet . now most every thing has gone to my feet. i do have a tightnest around my waist ,and a tighnest in my lower back.the more iam on my feet the worse my feet get ,but my feet allways heart.i have seen many doctors ,and specialist and many many tests.the doctors have left out nothing.some say maybe MS,or maybe transverse myelitis.also i get tired very easly.i would like to now if neurotin will help my pain. Thank you larry
5 years ago i was stuck over aperiod of just afew days with tingling in my figers tips .and then a burning tingling in my feet . now most every thing has gone to my feet. i do have a tightnest around my waist ,and a tighnest in my lower back.the more iam on my feet the worse my feet get ,but my feet allways heart.i have seen many doctors ,and specialist and many many tests.the doctors have left out nothing.some say maybe MS,or maybe transverse myelitis.also i get tired very easly.i would like to now if neurotin will help my pain. Thank you larry
5 years ago i was stuck over aperiod of just afew days with tingling in my figers tips .and then a burning tingling in my feet . now most every thing has gone to my feet. i do have a tightnest around my waist ,and a tighnest in my lower back.the more iam on my feet the worse my feet get ,but my feet allways heart.i have seen many doctors ,and specialist and many many tests.the doctors have left out nothing.some say maybe MS,or maybe transverse myelitis.also i get tired very easly.i would like to now if neurotin will help my pain. Thank you larry
Cindy, you symptoms sound very similar to mine. I've been experienceing feet numbness and tingling pretty consistently for about 3 months, along with calf and sporadic body twitching. Saw a neurologist at the beginning of my symptoms, and he said it was "nothing." Well, 3 months later, and they have gotten worse if anything. Also recently have been experiencing some facial numbness and eyelid droopiness. I am very concerned, and almost convinced that I have MS. I see a neurologist at the end of November. Have you had the body twitching also?
john,
i have been experienceing since April 1997 similar symptoms. I have numbness/tingling in my left foot, sometimes right foot, from the ankle down(feels like you are wearing a glove), primarily left foot and also sometimes my left arm (from elbow down) numbness/tingling. I have seen 3 neurologists, 2 general practitioners, podiatrist, and a rheumologist. I've had 3 MRI's with contrast, evoked potential test, doppler test, nerve conduction test, lupus test, b12 test, heavy metal test, all kinds of blood work(from HIV test to every other kind you can name). I even tried anti-depressents(which I was totally against, and felt like a zombie, so i quittaking htem, they did not help anyway) . I did everthing the doctors ask of me. ALL TEST HAVE COME BACK NEGATIVE. The doctors say MS - possible, but not probable; no to arthritis, no to everything. the doctors say peripheral neuropathy(unknown); what exactly does that mean; they do not know. Sometimes the numbness will go away for months, then it will return. I do nothing differnt in my lifestyle. I have kept a calendar of what i eat, when i'm stressse, etc., no corelation. I'm taking nothing and when it happens i just have to deal with it, like now. it has been gone since Feb. 2000(except maybe 5 times) bt it started back on 9-25-00. Best of luck to you and if you know anything I can do please let me know. TODAY STILL NO DIAGNOSIS.
Again, good luck
cindy
i have been experienceing since April 1997 similar symptoms. I have numbness/tingling in my left foot, sometimes right foot, from the ankle down(feels like you are wearing a glove), primarily left foot and also sometimes my left arm (from elbow down) numbness/tingling. I have seen 3 neurologists, 2 general practitioners, podiatrist, and a rheumologist. I've had 3 MRI's with contrast, evoked potential test, doppler test, nerve conduction test, lupus test, b12 test, heavy metal test, all kinds of blood work(from HIV test to every other kind you can name). I even tried anti-depressents(which I was totally against, and felt like a zombie, so i quittaking htem, they did not help anyway) . I did everthing the doctors ask of me. ALL TEST HAVE COME BACK NEGATIVE. The doctors say MS - possible, but not probable; no to arthritis, no to everything. the doctors say peripheral neuropathy(unknown); what exactly does that mean; they do not know. Sometimes the numbness will go away for months, then it will return. I do nothing differnt in my lifestyle. I have kept a calendar of what i eat, when i'm stressse, etc., no corelation. I'm taking nothing and when it happens i just have to deal with it, like now. it has been gone since Feb. 2000(except maybe 5 times) bt it started back on 9-25-00. Best of luck to you and if you know anything I can do please let me know. TODAY STILL NO DIAGNOSIS.
Again, good luck
cindy
After reading the message about your burning sensation...I am familiar with ms.and i know they can do a punture sometimes and tell whether or not you have it.It starts with numbness on one side mostly mine has anyway.cat scans and mri cannot show it sometimes.id say thats whats up with you.also b12 and 6 is suggessted for people with ms and such disorders...hope this can help ya some
I am suffering from a neuromuscular disorder following a severe knee injury, I have had severe burning in my groin for a year or more. today my groin was burning for several hours. Nothing new positions or ice would relieve the pain. Next thing I knew my body went numb all over, I felt my right arm go completely numb and at the same time felt as thought I were going to pass out. My heart is beating beating between 90-120 beats per minute. I feel like I'm on a strong pain killer, but I'm not. I thought may be it was a pinched nerver, or a reaction to the trigger point therapy.
JOHN,
MY HUSBAND HAS BEEN HAVING SOME OF THE SAME SYMPTOMS BUT IS ALSO COVERED IN HIVES OR A RASH WE ARE NOT SURE. HE HAS HAD SEVERE JOINT PAIN,GROIN PAIN,NUMBNESS IN THE FINGER TIPS, BURNING SKIN,LOWER BACK PAIN AND SOMETIMES FEVER. WE HAD BEEN DOCTORING FOR 6 WEEKS AND TODAY THEY FINNALLY TOLD US HE HAS ERICULOSIS. I KNOW THE SPELLING IS INCORRECT BUT THAT IS HOW IT SOUNDS. YOU GET THIS FROM A FEMALE NORMAL WOODTICK WHEN SHE IS ABOUT TO LAY HER EGGS SHE CARRIES A BACTERIA THAT WHEN IT GETS INTO THE BLOOD STREAM IT ACTS JUST LIKE LYMES DISEASE. IF YOU HAVEN'T BEEN TESTED PLEASE GET TESTED FOR THIS AND LYMES AGAIN THEY SAY IT IS VERY EASY TO MISS.
GOOD LUCK
MY HUSBAND HAS BEEN HAVING SOME OF THE SAME SYMPTOMS BUT IS ALSO COVERED IN HIVES OR A RASH WE ARE NOT SURE. HE HAS HAD SEVERE JOINT PAIN,GROIN PAIN,NUMBNESS IN THE FINGER TIPS, BURNING SKIN,LOWER BACK PAIN AND SOMETIMES FEVER. WE HAD BEEN DOCTORING FOR 6 WEEKS AND TODAY THEY FINNALLY TOLD US HE HAS ERICULOSIS. I KNOW THE SPELLING IS INCORRECT BUT THAT IS HOW IT SOUNDS. YOU GET THIS FROM A FEMALE NORMAL WOODTICK WHEN SHE IS ABOUT TO LAY HER EGGS SHE CARRIES A BACTERIA THAT WHEN IT GETS INTO THE BLOOD STREAM IT ACTS JUST LIKE LYMES DISEASE. IF YOU HAVEN'T BEEN TESTED PLEASE GET TESTED FOR THIS AND LYMES AGAIN THEY SAY IT IS VERY EASY TO MISS.
GOOD LUCK
HI John.... I take the Neurontin for my shingles pain... I saw a different doc and he added Gabitril too it. The combo seemed to helped a lot. Good Luck.... Have you checked out PUBMED.com Just a thought...
PS. I am not a dr. Just a person who has experienced cronic pain..SHingles. I do agree that after a long bout of pain the body tends to get depressed...Prozac worked for me.. There are many out there.. One just has to try different ones to see what works for them... How about Elavil??? Not a bad start.. Aloha
I was hit with shingles at age 39.. I am now 47 learning to live a stress free life. Ha Good luck..
PS. I am not a dr. Just a person who has experienced cronic pain..SHingles. I do agree that after a long bout of pain the body tends to get depressed...Prozac worked for me.. There are many out there.. One just has to try different ones to see what works for them... How about Elavil??? Not a bad start.. Aloha
I was hit with shingles at age 39.. I am now 47 learning to live a stress free life. Ha Good luck..
