Has there been any new information for hypnic jerks?
I have had this condition for 4 years & have posted here a few times over the last few years. After researching hypnic jerks & reading your forums in May of this year I started being treated by the Cleveland Clinic.
I have been told I am a textbook case for severe hypnic jerks & unfortunately not much is written about treatment. I am currently on 800 mg of Neurontin & 1 mg of Estazolam which does help, but certainly there are nights which are not so good, which makes the days not so good. I have tried 1 mg of Clonazepam a few years ago & it didn't help. Also, recently, the dr. tried adding 0.125 of Mirapex to see if that helped, but I woke & dreamt more frequently so we discontinued it.
I have come to accept this condition will probably never go away. I know everyone has these to a certain degree but mine are severe. My questions are as follows:
1. Do you know how/why a person gets these so severely?
2. What is the difference in nocturnal myoclonus & hypnic jerks?
3. Do you hear of patients with this condtion as a chief
complaint?
3. Do you know of any others medication/s that would be
effective?
Any information you could add would be greatly appreciated.
Thank you.