I am a 53 year old woman, previously in good health, who had a massive pulmonary embolism in Oct,2000. I spent 4 days in hospital on Herarin (insufficient dose given) & am now on Coumadin. Diagnosis was made through VQ scan. No Doppler was done as there was no swelling of my legs so the source the the PE is unknown but assumed to be legs. I have no family history of clots. At the time the only risk identified was that I had been on HRT for 6 months.
Blood tests have now established that I have Antiphospholipid antiboides (I do not know the titer) & elevated Homosysteine. I believe I am being tested for Lupus (tests for C3, C4 complement, Antinuclear & CH50 were done but results not known).
PROBLEM
Ten days after the PE I started getting small trobs in both calves which are not painful. They do not feel like cramps. They come & go but are most often felt while sitting or laying down. Generally around mid day my calves become rigid (the muscle does not release when relaxed). This only goes away if I put my feet up or lay down for about an hour.
At my request, my doctor prescribed compression stockings. These help prevent the rigidity but I can still feel the thobs. If I stop wearing the stockings for a few days, the rigidity starts again.
I have no swelling or changes to the skin surface. I do feel a crawling feeling under the skin, generally in the morning before I get up. My doctor has no idea what this is and has ruled out post thrombotic syndrome. Any idea on what this could be?
Doreen