Lots of Symptoms

[KeGroNY]

Hi im a 28 y/0 M in NYC..im experienceing alot of Neuro symptoms but not getting much help
Im having numbnessface and both arms....also extreme tingling in left hand and foot...also some weakness on left side...Now feeling of hot flashes ..seems decreased sweting and decreased sensation of bladder.....this bladder problem seems to flucuate better to worse and back again.Also nasal congestion and extreme ear fullness.Lots of pain in THORACIC spine and a pop sometimes if i sneeze or turn the wrong way.Also i hace white trails in my vision..ive had this for a few years(like i move my hand against a dark background and a trail follows it)

Ive had all normal blood work. normal emg of legs. normal tilt table for autonomic function. and MRI of Brain and C- Spine.the MRI of the Brain report said fine as did 2 Neurologist.......then 1 neurologist saidthere were demylenation lesions on it ..but he only saw them on one picture and not on any other picture out of all the films.He didnt seem to understand why this was.So i showed antoher Doc and she said she would read it as normal..maybe artifact form machine.......but i do have symptoms. Any ideas of what this could be or my next move

any help is apperciated

oh another symptoms i have is sometimes at night i wake up violently after .i checked the internet and the thing i found the resembels this is something called "Sleep Starts"

thanks again,
Keith

[Tal]

It should also be noted that although the old definition of ACM requried the herniation to be at least 5mm in length, the leading experts along with several studies have shown that IN symptomatic patients ACM 1 can be present with a less than 5mm herniation.  Other physiological factors need to be taken into account along with neurological study and symptoms.

I would also recommend the sites mentioned by the previous poster

[PT-works]

Keith-Two great sites to reseach Chiari I Malformation are: World Arnold Chiari Malformation Assoc. and Chip's Chiari Page. Lots of good info on symptoms and support.  CSF(cerebral spinal fluid) studies (Cine MRI flow study) are very helpful to determine abnormalities in the velocity/pressures in the posterior cranial fossa. These abnormal pressures are the leading cause of syringomyelia. My 12 year old son was Dx with Chiari last year-after 4 different consultations with neurosurgeons, we did do surgery but did not do a "Dural graft". He is back playing State Cup level soccer and is painfree and sxs free.  PS. I'm a Physical Therapist and was very reluctant to rush into any surgical intervention. Good luck, Kathy

[CCF-Neuro-M.D.-JT]

The MRI findings of cerebellar ectopia just mean that the back part of your brain is displaced downwards a little bit.  Depending on how far down they're displaced, it may or may not be considered an Arnold Chiari malformation (5mm is the cutoff).   As I have never seen your MRI, I cannot further comment on your specific case except to say that this does not explain your symptoms.  We see this all the time on MRIs and most of the time they're incidental or clinically silent, meaning they don't cause any neurological symptoms.  

As for your particular symptoms, they don't appear to localize to just one area of the nervous system.  If demyelinating disease is suspected, further evaluation could be considered such as a spinal tap and evoked potentials of your arm and leg to see if there is a problem with the nerves.  Bloodwork to look for thyroid disease, vitamin deficiency (B12) or inflammatory diseases such as lupus may also be considered. GOod luck.

[KeGroNY]

Hi Keith again failed to mention i had a repeat MRI......showed no evidence of demylenation...CEREBELLAR TONSILLAR ECTOPIA noted and CHARI I MaFORMATION cannot be ruled out.......whatis that

Sorry about the double post i appreciate all the help