Hey Anya, sorry, I just now read through all the posts and saw yours. I really want to let you know that MS is NOT a life sentence to disability. I've only been diagnosed for a year and a half but I, too, am 27. I know what it's like, that first few months of explaining to everyone you know what you have and what can be done. I've been taking Rebif three times a week for 18 mos. ( I used to faint whenever I got a shot) and now I'm doing great! It's hard to see it now, but there is much hope for a cure for all of us. It's actually not that bad of a disease (as diseases go.) It's not fatal, and if you're a hypochondriac (like I've always felt I was) you can blame everything on MS. There will be many hard days of uncertainty ahead, not knowing what the future holds. But know that if you let yourself rest, keep on top of your meds and stay as positive as you can, we'll have a cure before you know it! I know this all sounds a little too "little miss sunshine" but you can't let the fear of MS breakdown your life.
I have had shooting pains on the right side of my face for 9 months now. I was diagnosed with MS in May '05 and have been taking shots for it since with no flare-ups. I had an MRI when I told the neurologist about the sensations (which were stabbing pain around my jaw and down the right side of my neck. There were no new lesions found and they thought I had a muscle spasm problem. After physical therapy, several kinds of neuropathy drugs and countless hours of pain I still haven't been diagnosed successfully. I heard something about "tic douloureax" last night which sounds SHOCKINGLY familiar. Does anyone know if and what the connection between MS and this Trigeminal Neralgia is?
I woke up this morning, feeling normal. I got up and did my usual neck stretch, but all of the sudden the whole left side of my neck started to tingle, and then it led to numbing pain. Nothing tingles in my arms, or hands. It stays near my neck, now I can't even try moving my head to get blood flowing. It feels like it swells inside, and stays for about 15 seconds then the pain subsides. Somebody please help me, I can't even move right for fear of it happening again.
This is me again. I forgot to mention that except burning sensation when I bring my chin to the chest, I also have a very weird feeling in my hands when I vacuum. I never read about anything like that, when I read about MS symptoms. My both hands are shaking inside for 30-40 minutes after I am done vacuuming. I can't believe it and I am only 27 being strong as a horse all my life !!! Am I just so weird or this is a common MS symptom? I am so new to MS (I got diagnosed officially just a couple of days ago) and I don't know what to expect, though I read so much already that I can be a neurologist myself :O)
Thanks for asking this question "If you bend your head forward, so your chin touches your chest,
do you experience any sensations?". Thanks to you I know for sure I have MS. I wish my neurologist had asked me this question. I had some numbness in my right thigh, I went to see a neurologist and MRI she requested showed 3 or 4 old MS like lesions. My numbness went away in 3 weeks and I had no other symptoms as I thought up until I read your question. My spinal tap was negative for MS but my doctor insisted I had MS though I had "0" neurological symptoms. She wanted me to start treatment but I refused to do so because I felt completely normal. I was trying to find an excuse why I could have lesions in my head (one of them was that I had a severe case of staph infection a year ago). I was always healthy, fit, didn't smoke and, like everyone, I thought that MS or any other scary disease will never happen to me or my family....It was very frustrating. When I read your question about bringing a chin, I did it immediately and I couldn't believe what I felt - my right side of the body started to catch fire and started burning for as long as I was holding it this way. I realized that my doctor was right - I do have MS. I was a total wrack for days, I couldn't imagine how to continue to live my life (I have 2 baby boys and Husband I adore) and only now I start to get used to the idea. I am so scared and at the same time I feel good not to live in MS denial and be mad at my doctor. I called my Doctor and told I am ready to start Avonex treatment. I pray God they will invent MS cure, I don't want people who love me to worry. What I am saying, you have to take seriously what body tells you, it's very important not to waste any time and start treatments no matter what disease one got. Hopefully somebody has just a pinched nerve or something insignificant but Better to be Safe than sorry and see a doctor right away. I do have MS but now I feel lucky I caught it early !!! Good luck to everyone !!! Take care of yourself !!!
I had an external head injury about 4 months ago, and at the time I developed "goose eggs" on my forhead. I was hit on the side of my head near the end of my eye brow by a strong force object. I had a cut and it was bleeding along with the "goose eggs". I noticed there was a sac right above the cut and I figured it would go away eventually like the others did. Well it's months since the injury and it's still there. Before it was soft sac, felt like fluid was in it, and now it has hardened. I am worried about it. So, I am wondering if anyone can give me some advice about what it could be. Any clues or information would be greatly appreciated. Thanks!