Thank you so much for all your information. Yes, my son indeed has CHARGE syndrome (infact we have 2 sons with CHARGE syndrome, my husband and I adopt special need children). Zak is 2 1/2 and Tryny is 8. We know that Zak has facial palsy, is missing parts of the frontal lobes of the brain and has retardation, but we don't know that the degree is yet as he's too young to determine. We did not know about the problems of the brain stem until the swallow study was done, and I'm the kind of mother that has to know everything I can about my son's diseases and problems. You were very helpfull with my gathering the information I was needing.
http://search.atomz.com/search/?sp-a=000108b6-sp00000002&sp-q=BRAIN+STEM
http://www.neuroskills.com/
http://www.neurologychannel.com/
Try these. They are excellent sources of information regarding the brain stem.
I am so sorry your child has to go through this. It is so difficult on the parents and the family. You pose such a great question. Best to learn as much as you can aboutthe brain stem.
Good luck to your child, you and your family
Very sorry to hear about your son. It sounds like hemay have CHARGE syndrome plus, meaning he has other medical problems in addition to the CHARGE syndrome. The brainstem is composed of three major structures: the midbrain, pons, and medulla. It has a large number of functions, many of which will likely remain normal in your son's case. FIrst of all, it holds the nuclei (or origins of nerves) to all of the nerves and muscles in the head such as that to wrinkle the forehead, smile, close eyes, facial sensation, hearing, eye movements, taste, etc... Second, it has cerebellar fibers involved with balance and locomotion. Third, it has all the fibers that run up and down from the brain to the spinal cord for all of the functions. It also carries connections from the brain, thalamus, and autonomic nervous system as well as numerous other systems. Other Important structures are the cardiac and respiratory centers in the brainstem. The brainstem is a vital and complicated structure that is essential to human life. A better understanding of your son's clinical picture and imaging studies of his brain and brainstem are needed for a more specific analysis of his symptoms.
This is probably a lot more information that you needed, and perhaps not all that you wanted. Talk to your son's pediatric neurologist to find out more about what's going on with him and if he has developmental abnormalities of the brain stem. Finally, for more information on CHARGE, you can write to he CHARGE foundation at www.chargesyndrome.org or call 1800 442 7604. Good luck