Aa
Too young for significant cognitive and physical decline
what causes significan cognitive and physical decline in a 45 year old female, with out a mental health condition, visible lesions on MRI but does have MRI of irrelivant bleeds?
Hello,
I did this as a test of the new feature, just to see what happened, its all true but very none specific and doesn't cover half of what i have going on. I know we've chatted on the MS forum ;-)
I dont have a dx of MS, though i think one day i will, far too many issues i have are also MSer issues though i didn't know anything about MS until i started walking like a string puppet in April 09 after getting a bad mouth ulcer. I saw a documentary and saw my self in the way one of the girls was walking, and thought i'd better find out if what i've accepted as normal for me after i get a bug in my system, is something else.
Saw a neurologist, he picked up clinical signs of neurological nature but didn't order the MRI right (no contrast and no MS protocol 1.5T), still he said i didn't have a stroke and didn't have MS. I asked questions and he got angry because he had a plane to catch, he sort of blurted out explanations but i was really just getting him angrier the more i tried to understand what was happening.
He brought up one brain picture and said all he saw were 'irrelivant bleeds' he said my brain didn't light up enough, there's something going on here here and here but you've got a good brain. He said there was nothing on my spinal MRI but when he brought up one picture of the spine he said there was something going on here but not what i was looking for.
I asked him why i lost all nouns, i couldnt name my children when it first hit but i'd since retrieved a lot but still struggled naming things. He said off hand like he was saying nice hat, that it was probably senile dementia, i was 44 at the time and he'd just told me I had a good brain lol. When i asked him why i was walking like a sting puppet he said it could be psychological, all i was thinking was what happened to all the clinical signs of spinal lesions he found 8 weeks prior.
It was weird and confusing, everything i asked he responded with sarcasm, in the end i asked him to stop because i didn't understand what was going on. I left after being told off for having a friday afternoon appointment lol he put me off big time, its easier not trying to find out whats going on if you get that type of reaction in the condition i was in.
Had neuro psych testing that found over 2 standard deviation decline but because i previously had a high iq its not seen as significant decline unless its below normal, dont know what they are talking about, its actually very significant! Neuro-psychologist thought maybe stress or vascular in origin but still no answers. Had mental health assessed, nothing wrong with my mental health but give it time lol, still no answers.
So i have bleeds but they are irrelevant even when i have a few other signs of vascular issues, purple hands and feet, ice cold limbs, bulging veins, blowing veins, falling over, seeing stars and all these cognitive and neurological problems going on, so how he desided they were irrelivant is anyones guess! I trust him less than my cat!
Sorry i've gone on and on, i didn't know what not to say, and believe me i've left out a lot lol
Cheers......JJ
Ps thanks and i'll look for you on the other side
I did this as a test of the new feature, just to see what happened, its all true but very none specific and doesn't cover half of what i have going on. I know we've chatted on the MS forum ;-)
I dont have a dx of MS, though i think one day i will, far too many issues i have are also MSer issues though i didn't know anything about MS until i started walking like a string puppet in April 09 after getting a bad mouth ulcer. I saw a documentary and saw my self in the way one of the girls was walking, and thought i'd better find out if what i've accepted as normal for me after i get a bug in my system, is something else.
Saw a neurologist, he picked up clinical signs of neurological nature but didn't order the MRI right (no contrast and no MS protocol 1.5T), still he said i didn't have a stroke and didn't have MS. I asked questions and he got angry because he had a plane to catch, he sort of blurted out explanations but i was really just getting him angrier the more i tried to understand what was happening.
He brought up one brain picture and said all he saw were 'irrelivant bleeds' he said my brain didn't light up enough, there's something going on here here and here but you've got a good brain. He said there was nothing on my spinal MRI but when he brought up one picture of the spine he said there was something going on here but not what i was looking for.
I asked him why i lost all nouns, i couldnt name my children when it first hit but i'd since retrieved a lot but still struggled naming things. He said off hand like he was saying nice hat, that it was probably senile dementia, i was 44 at the time and he'd just told me I had a good brain lol. When i asked him why i was walking like a sting puppet he said it could be psychological, all i was thinking was what happened to all the clinical signs of spinal lesions he found 8 weeks prior.
It was weird and confusing, everything i asked he responded with sarcasm, in the end i asked him to stop because i didn't understand what was going on. I left after being told off for having a friday afternoon appointment lol he put me off big time, its easier not trying to find out whats going on if you get that type of reaction in the condition i was in.
Had neuro psych testing that found over 2 standard deviation decline but because i previously had a high iq its not seen as significant decline unless its below normal, dont know what they are talking about, its actually very significant! Neuro-psychologist thought maybe stress or vascular in origin but still no answers. Had mental health assessed, nothing wrong with my mental health but give it time lol, still no answers.
So i have bleeds but they are irrelevant even when i have a few other signs of vascular issues, purple hands and feet, ice cold limbs, bulging veins, blowing veins, falling over, seeing stars and all these cognitive and neurological problems going on, so how he desided they were irrelivant is anyones guess! I trust him less than my cat!
Sorry i've gone on and on, i didn't know what not to say, and believe me i've left out a lot lol
Cheers......JJ
Ps thanks and i'll look for you on the other side
I don't have answers as to why we have this problem.
I wish I knew...
You wrote something that really caught my eye!
I've had bleeds in the small veins of my brain off and on since October 4th of 09.
That's what t put me in the hospital in the first place and
changed my life over night!
It was discovered that I have MS also on the MRIs.
I'm not sure what you mean by irrelivant bleeds and
would be very interested in talking to you about this!
I have searched all over and did find
several cases of MS with bleeds like mine.
Do you have bleeds too?
I also have trouble from time to time with cognitive issues.
I lost mobility at the end of October.
I am able to walk short distances with a leg brace and a walker.
Best wishes to you and Yours!
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