Worried about neuro symptoms - any thoughts?

[Flipzoid]

This may well not be connected but about 9-10 months I developed an infected rash on my chin for which my doctor perscribed anti-biotics. I then started experienced pains in the back of my arms (near the elbow) and cramping just below the ribs. I had a blood test for my white blood cell count, mono, and even visited a tropical disease department (I had been in south east asia 10 months ago) and all tests came back fine. However about 3 months ago I started getting pins-and-needles in my hands and arms which was shortly followed by:

- twitching in my left eye lid and lower lid. Went on for 2 weeks non-stop at one point but continues on-and-off daily.
- spasming muscles (all over my body but especially in the legs and bottom of my feet).
- a sort of static like buzzing/vibrating feeling in my legs (very strange feeling)
- pain in the top left hand side of my back
- one ear feels quite blocked (a numb pressure)
- On the upper thigh of both legs I can feel a strange lump under the skin.
- tiredness (maybe caused by feeling down due to the above symptoms)

I am waiting for my referal to a neurologist which I am waiting on the appointment.

These are the freakiest and most unsettling feelings I have ever had. It feels like im part of a David Cronenberg movie with things happening inside my body which I have no control over.

Has anyone had similar symtoms? Any thoughts?

Thanks in advance,

Mark

[patsy10]

Just to let you know, lyme tests are very innacurate and unreliable.  You can test negative and still have it. I've seen 3 neuro's and none of them knew anything about lyme.  The best doctor to see is a lyme specialist.  You can find one by going to lymenet.org.  You can also ask questions here and find out a lot more about the disease.  It's worth at least looking into.

[mrssmr71]

My husband age 35 has been having similar problems.He has seen several nuerologists not one of them can dx him. They don't know. He has diabetes,severe sleep apnea, high BP. He had a muscle biopsy done but order was not done right, no answer.
His CPK levels have been elevated as high as 400 after repeat blood work it has varied between normal and high readings.Lyme test is neg. Several cardio tests where done all ok. He suffers w/ Severe Muscle spasms effecting all muscles through his body. Mainly has effected his lower extremeties. He is always in severe pain, currently on MS Contin 3x's day, seems to be helping with the pain. Mobility is challenging long distance use w/ wheel chair, otherwise walks short distants with a cane.
Completely unable to work.
Any info would be helpful.

[johnflox]

The chances that your neurologist is aware of quinolone's toxicity are very low indeed, close to zero. Apparently there is the rule of the thumb among doctors that quinolones are very safe antibiotics. That is far from the real thing. Probably it will still take years before such well known toxicity becomes common knowledge among doctors.  

You should do your best to check what antibiotics you took, just to rule out a reaction to quinolones because if you are suffering one, next time you take those medications you can end up with irreversible injuries, for-life conditions. The curious thing is that victims start to notice those lesions weeks or months after the treatment, when there is no possibility to reverse the damage.

One year ago, all fluoroquinolone antibiotics have a warning added to the package insert alerting about irreversible, mostly neurological, conditions if taken after the first signs of toxicity, or if you are rechallenged. The warning is based in the exprience of thousands of cases of perfectly healthy and athletic people that were severely disabled by quinolone antibiotics taken for common causes like a sinus infection or a prostatitis.

[Flipzoid]

Hi,

Thanks again for your replies. I am not 100% sure but I think I have taken the following antibiotics over the last 10 months:

Rocephin, azithromycin (Zithromax), and doxycycline

[patsy10]

Have you looked into Lyme disease?   Your symptoms are similar.  You might want to try a google search.

Good luck

[snoopy_301]

I was a  healthy, fit 39 yr. old woman and was having many of the symptoms you are having - muscle spasms, twitching, vibrations/buzzing, and muscle soreness all in my legs and feet.  My eyes started twitching two weeks ago  may be my eyes are due to stress).  I posted a comment here and someone asked me if I had taken Cipro and the ironic thing is that I had - three days before my symptoms appeared!  I never put the two together - I never knew an antiobotic could do this.  I've seen a dr and had a MRI of brain and complete spine, lots of blood work and nothing shows.  I believe it was the Cipro - the timing fits and they can't find anything else.  With as healthy as I was, nothing else makes sense.  Good luck!