right internal carotid artery kinking and my symptoms

[bbr29]

Low pressure dull, boring headache..seems focused in specific region between the eyes, but also spreads tension-like discomfort to top of head...a "pulling downward" or "weight" feels like it runs through the middle of my head. Unexplainable mental hazing of vision, and eye pain when looking side-to-side. Also have had positional dizziness with nystagmus...dizziness doesn't subside until I sit back up.  Some relief when putting pressure on the affected areas of the skull (mainly forehead region). Also holding nose and blowing air into ears and holding give tremendous relief, but very temporary. ENG dizziness testing negative. Also High pitched tinnitus much worse in quiet rooms. Most recently, constant eyelid/orbital twitches.

I have been imaged my brain and neck.  The anomolies found have been  1) EEG-slowing of Delta waves.... 2) MRI brain/neck- 3 centimeter extraaxial benign osseous (bony)lesion above left orbit, maybe (probably?) fibrous dysplasia;  Mild to moderate spondylosis at most levels C2-C6.    3) MRA- kinking of right internal carotid at C2 level.

My neurologist (who is at a major university) doesn't know what to tell me anymore and cannot find an answer to my problem.    Do you think any of these problems COULD be causing my problems? I'm especially wondering about the carotid kinking.  The fibrous pressing against a nerve or a sinus?  The carotid kinking causing a blood flow malfuntion?  The spondylosis?   Any other ideas?

30 yrs old, otherwise healthy, well built, a little overweight not much
PLEASE, PLEASE HELP ME  I AM SERIOUSLY "DESPERATE"

[CCF-Neuro-M.D.-PW]

Its difficult to interpret the exam results without seeing the images or EEG themselves, so my advice is quite limited

Your condition sounds like a form of chronic daily headache, that has its own managment issues best dealt with by a headache neurologist

The EEG delta waves can be normal in sleep or drowsiness or if young <about 18 years, if present while awake or locally in one area of the brain they can be abnormal - I do not know which is the case in your setting

If the lesion on MRI is extraxial, that means it is outside the brain (ie not a brain tumour). It sounds small and if it does not change in size over time, this supports a benign nature

Kinking of the internal carotid is not unusual finding on MRA and is usually considered an incidental finding unless accomanied by sypmptoms referring to that are like left sided weakness or sensory loss.

[bbr29]

PS,  when I lay down on my right side, I feel intense localized pressure and pain above my left orbit where the ossous lesion is.  Do you think this alone point the finger at the lesion?

Also, if it is a "bony" lesion as the doc thinks, I have to wonder why it shows up so clear on the MRI.  Are there any thoracic spinal problems that maybe causing this because I allways have back pain in the middle of my back, I wonder if a small tumor or something could be pressing on a main artery around there,    Yes I know I sound like I'm jumping around here but I'm so desperate   can you please help me

thanks and merry christmas to you