need some advice

[Udaysk]

I am a 25y old male, Asian. I was dx'd with urinary retention about a year back and need to cath 4 times a day to empty my bladder. After about 6 months noticed sensory changes in sexual function, then two months later faced constipation. I have recently started to feel my left leg toes fan out whenever I lift up my feet + tremor in the shin/tibial muscle, can still heel walk though. Both my arms and legs are hyper reflexive 2+ symmetrically. Sometimes I get mild spasms in both my hands (simultaneously), pain behind both eyes on and off without any visual disturbances. I have no cognitive and gait problems.

I have undergone plain T1 and T2W FLAIR MRI of brain and spine at 1.5T multiple times and 3T plain sagittal screening of spine once with no detectable lesions. Had nerve conduction test done for PNS, CSF checked for various common pathogens/STD -all negative. My neurologist says that I don't show any clinical signs of MS as I don't have any upper motor problems and suggests that I undergo neuromodulation/LDDM to correct urine retention and protect kidneys.

I plan to approach a different neuro again. Would Gd contrast make a diff. at 3T for MS lesion visibility? Is it possible to have gross neurological deficts due to MS/infections without showing any lesions on MRI?

[Annie62]

Jenny,

I thought JCmcc was a medical student and a neuropsychologist...when did he start studying to become a priest?  I almost peed in my pants when I read your post.  Come to think of it, there was someone several months back that said they were in the priesthood/seminary, but I didn't connect it with his name/moniker until you mentioned it.  

All I can say is, if he is in seminary, he better get in that confessional box and start atoning for his fibs :)

[Jenny Wren]

The seminary stuff I heard on a Lyme disease forum, not here.  Since then he has been banned from that site.  Last year he was here posting as JMcc Phd, I think that is how it was posted, he said he was studying physiology, but please don't quote me on this, maybe look back in the archives around spring of 06, you may find it.  I understand his need to try to help people in need, but when you here one thing there and one thing here, and they never seem to match up, it makes you wonder if he's not truthful.  One minute he says he has Lyme, the next MS, or multiple scarring, who knows, oh well, Happy Easter Annie!!!!

[Jenny Wren]

JCMcc is a not in the medical field, he's studying to be a priest, from what I have read, but then again, last year he said he was a PhD, thats how he signed his posts then here.  He just has done alot of research about MS and Lyme disease.  

[BobbHilton]

Hi,
  The demelination affects the large myelinated fibers while the autonomic systems are opersted by small almost all non myelinated fibers, plus the spine 1.5 tesla MRI is negative in symptomatic patient for a long time!!
   This case is still autonomic dysfunction esp cholinergic fibers, and the possibility of a paraneoplastic disorders esp from SCLC or a variant of GBS

   Bob

[Annie62]

He has been over on the patient-patient forum answering questions.  He did say that he practiced medicine overseas (London, I believe).

[Margaretx]

Since they're both gone you may be right that they were kicked off.  FWIW, I really, really don't think Hilton is a retired neurologist, mainly because I can't believe that anyone who had actually practiced medicine (in the US, anyway) would so cavalierly offer specific medical opinions to a person he had never examined.  Sounds more like something a student or maybe a PA would do.