Neurology Community
should i be worried?
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

should i be worried?

I had cranioivertabral surgery for chiari malformation on 28th july 2010. This was followed by a lumba shunt fitted 12 days ago. Im still having swelling and headaches. The swelling sometimes changes shape depending what position my body is in.  Sometimes  It feels like a big ball at the base of my skull into neck. Other times it feels flatter but spreads into my neck, face and shoulders. Does this mean that the shunt is not working. Am starting to think that this surgery has failed what is the next step??? Please help.
Related Discussions
5 Comments Post a Comment
Blank
997898_tn?1303738464
it sounds to me like you need to call your surgeon!  it does not appear that your shunt is working.  it sounds like a build up of csf.  are you having a lot of pain as well?  if you don't mind my asking, did you go to a chiari specialist to have your surgery done?  why was the shunt put in originallly?  is there a leak in your patch?  what kind of patch was used?
Blank
620923_tn?1405964489
Hi Maxine...I was unaware of the shunt....I am so sorry I was not on lately to know what was going on with u.

It may take some time for them to regulate the shunt...call ur dr and let him know how u r feeling.

And do keep us posted

"selma"
Blank
Avatar_f_tn
went to the gp today to have staples out of spine and side. She said she is going to contact my surgeon and will phone me back to let me know what to do. Have been waiting for the phone call for 4hrs already!!!!!!!! Will keep you updated.xx
Blank
Avatar_f_tn
sorry not been on for a while ended up back in hosp to have shunt relocated. Its still not fixed me though. I have pseudomeningocele? and feel sick constantly. Have been advised just to wait and see how things settle down. Its been 2wks since last op and still feeling no better,i knew it was going to be hard but not as hard as it has been. Think ive just been unlucky xx
Blank
997898_tn?1303738464
i'm so very sorry to hear that max!!!  what does your dr say?  did he give you a reason as to why you're having so many problems with the shunt?
elizabeth
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
144586_tn?1284669764
Blank
caregiver222
Avatar_m_tn
Blank
Ball123
1689801_tn?1333986916
Blank
Dagun
Iceland
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ