As an update-- This past week I have been having sharp random pains (the kind that take your breath away) where I would assume my ovaries were. (this is the same pain I had when I had cysts). I am still awaiting a call back from my doctor & starting to get worried.
My last surgery was in February 2010 & my lower abdomen is still VERY tender. Is this normal?
Thanks for your replies. I truly appreciate it!
Kate
Thank you so much for your response. And I'm sorry for the lack of information I provided. I am 26(with 2 children) and have had 3 surgeries since Oct 09; beginning with cyst removal, 2nd was bilateral ovary removal after frozen biopsy in surgery(dec 09), and the 3rd was staging, removal of fallopian tubes, omentum, and appendix (feb 2010). I ended up with positive wasings twice & do have one non-invasive implant on my bladder. I do however, still have my uterus. I was diagnosed with stage II borderline micropapillary serous neoplasm (I belive, that's the complete name)
Is it possible to confuse fluid with soft tissue on a CT scan. I fully trust my doctor, but the CT report says "ill defined soft tissue in the right adnexa" and my doctor said "some fluid where your right ovary was"
I don't see him again until June (my 3 month check up). Should I be suggesting a pelvic ultrasound at that time?
As for the BRCA test- do you know where I can find more *(reliable) information of this test? I like to be completely educated before I go in and ask for things...
Thanks so much for your time!!!
Kate
Dear Kate
thank you for your question. I see that you are 26 years old. I assume you had a limited surgery to preserve your fertility?
Are you planning on pregnancy in the near future?
The cysts on the kidney are common and benign.
It is possible that the CT scan finding is just post operative. At your age the appearance of the ovary and surrounding tissues will vary depending on where you are in your menstrual cycle
The best evaluation of the pelvic organs is by pelvic transvaginal ultrasound. I would rec a follow up in less than 6 months for that. Keep track of your last period so you can correlate that to the findings. A little fluid around the ovary or in the pelvis is common after ovulation.
On a larger scale, it is unusual to have an ovarian cacner at your young age.
If you have not already done so, ask you doctor about genetic testing for BRCA 1/2 gene mutations. About 10% of women have this gene mutation. For those who do, there is predictive risk information on ovarian and breast cancer.
Also you should plan to have at least your other ovary and fallopian tube (and possibly a full hysterectomy (removal of the uterus) within the next 5 years. If you made a cancer on one side , you have a high risk of making it on the other ovary. Risk predcition is also based on the grade and cell type of the cancer. You should ask for that information if you do not have it
best wishes