Hi there,
I am sorry you are going through so much discomfort.
Most likely you are just experiencing a flare of endometriosis again
However, there is a subset of women with severe endometriosis who are at risk for the development of ovarian cancer
The CA 125 tumor marker will not be helpful . It is commonly elevated with endometriosis. However, with you family history of ovarian cancer, you should consider a consultation with a genetic counselor to review your potential risks for ovarian cancer. You should consider the gene testing.
if you are at higher risk for ovarian cancer, you should consider a FULL removal of ovaries, fallopian tubes and uterus.when you have completed your family.
in the setting of endometriosis which may have as a source, the lining of the uterus, it is important to remove the uterus as well as the ovaries
now common things being common, you most likely are having a flare of endometriosis. You may need a laparoscopy and removal of that ovarian cyst at this time
good luck with everything
take care.
Hello
Thank you very much for your insight into my condition. As I mentioned my consultants will be meeting on Wednesday to discuss my treatment options. Whilst in hospital I did request that it was added to my notes that I would like to have a full hysterectomy including the removal of my remaing diseased ovary.
I am 40 years old and have completed my family, I am fully aware that this is major surgery and may be even not a complete cure for Endomitriosis plus i will have to take HRT for possibly the next ten years.
I just want to be as pain free as possible without relying on heavy duty pain killers and protect myself as much as possible from contracting this form of cancer.
Thank you once again for your help, it is very much appreciated.
Best wishes
Rachel
Hello Annekathryn
I spoke to my consultant and yes my CA-125 is raised, he now wants me to have an MRI scan before they will even consider surgery as they have to transfer me to a specialist hospital. I will see him after my MRI and I know I am receiving very good treatment, however last time they found a mass on the ovary they removed, I didn't even have a CT scan now having both and I'm feeling increasingly uneasy about my situation.
I am trying to stay positive and have taken aboard your advice about Endomtiosos and a benign cyst.
Has any other ladies been through a similar situation? I would very much appreciate any replies, even if it is to share your experiences which may be different to mine.
Thank you,
Rachel
Hi just wanted to say that the complex mass on my ovary is NOT malignant!!! As you suspected it was caused by Endometriosis. I am so so do relived, I will need surgery but that seems like a walk in the park compared to what it could have been!!!
Best wishes
Rachel
wonderful;
thank you so much for the follow up