Recheck showed nothing..What is going on?!

[wubbie3]

I went back to the gyn for an ultrasound yesterday. No cyst to be seen. Ultrasound tech said everything looked normal on ultrasound. After appt was over, since I was still in lots of pain and all they would tell me to do was take something, I went over to the ER across the street. Had bloodwork and urinalysis done (ow, dang the catheter hurt!), all came back in normal ranges. ER doc opted not to do a CT scan, since he said that the levels on bloodwork didn't indicate infection of any kind.
What the heck is going on in there??? I don't want to spend my days drugged up to dull the pain, but I also don't want to end up in the ER (or worse) for something that turns out to be major that they missed!
"Supposedly" I shouldn't have adhesions since gyn put mesh over the ovary to prevent them. Well, "supposedly" I'm guessing they are there! What the gyn told the ER doc when he called her was that it could be ist that I was coming down from the 1st Depo shot and since they doubled the dose, ovaries could be having a hard time adjusting. Why just one side, though? And why the *beep* didn't she tell me this in the first place!!!!
I just want to cyber-scream!!! (Actually I want to do it aloud, but I think I'd get fired for disrupting work)
Anyone else have these type problems? (4mo from surgery, pain on R side [same as cyst], swelling in area, pain wrapping around into the back)
I just don't know what to do... I can't decide whether to go on a rampage or just sit down and cry. I'm soooo frustrated!
I just don't know what to do....
Help!

[Mary 53]

Do you guys need the body rolling information? And, Tascha...wow..again, I am impressed. What a great explanation. I forgot that you were doing it and I am so glad it has helped.

Just today I did a demonstration (now there is a thought...make a video of this and put it on the "lite" site!)...on the floor while I was getting a glycolic peel (treat day for me)...I have known the nurse who does the peel for twenty years. And, I just found out that she has to go every 4 - 6 months to a Urologist to have her urethra (or is it ureter?) dilated due to problems she had as a child and the scar tissue/adhesions that form around them constantly. Since the body rolling for the adhesions for the type we have (I do body rolling once a year if that...seem to need less and less of it..and, I keep active, so that might be helpful, too) starts on the pelvic bone, it has to carry blood to the ureter area ( you would think) and should break up the adhesions that the nurse if suffering from. I am eager to hear how it goes for her when she tries it. She said the dilating process is horrible. Can you imagine.

When I had my colonoscopy, that is when we discovered the surgical adhesions...colapsing my colon. So, I got a little relief from the colonoscopy after it was over, but they suggested a colonoscopy every six months to keep the adhesions at bay. Ah, no thanks. Body rolling for me any day. Well, let me know and I can post the instructions again. I have them on my hard drive.

Mary

[wubbie3]

Thanks guys... I'm better today. Less 'rant and rave' and more 'rational decisions'. Still aggravated, but I was also put on double hormones, so I guess I'm allowed to have SOME mood swings :)
I will try the body rolling.... It's got to be better than sitting here with my side twinging. Oddly enough, it doesn't really hurt when I'm lying down or walking around. It's usually just when I'm sitting in a chair. Maybe because that area is kind of folded in a chair? No problems sitting in a saddle, but my legs and hips are straighter. I sit at the office all day, so maybe the adhesions formed while I was sitting on my butt glaring at my computer screen all day. Wonder what the bloody things have grabbed on to, since sometimes it hurts on the side and a little below the ribcage.
Big hugs to everyone... You have no idea how much I appreciate everything! I have a friend who listens but doesn't understand, one who sympathizes but doesn't understand, and one who makes light of it and doesn't think it's a problem! Being able to come here and vent and get responses from women who actually get it and have the same problems is the best thing in the world!
THANK YOU ALL!!!
~Marianne

[Gatsby]

I won't lie to you, it hurts like heck when you first start.  That is because you are breaking up the adhesions.  But let me tell you, once you are finished the relief does come!  You need to roll about 10 - 15 minutes and I usually will do this once in the am and once in the pm for just 2 days.  Usually after the first day, I am good, but the extra day is just for good measure!  You will feel a little sore at first, but not the pain that you feel with the adhesions.  When I feel the first twinge, I do the body rolling. I must say that I swear by this.  It does work wonders for me!  (ps, thank you Mary53 for letting me know about body rolling!!)
~Tascha

[Gatsby]

The pain that you are feeling could possibly be scar tissue or adhesions.  This usually happens anywhere from 4-8 weeks after surgery.  Scar tissue (adhesions) begins to grow and everything starts to stick together.  This can cause extreme pain.  I have found that body rolling can help break up the adhesions and relieve the pain.  I need to do the body rolling every few months as my adhesions continue to grow.  There really isn't much that can be done, as surgery to remove the adhesions only leads to more adhesions.  Check the archives here for body rolling and also google it.  You will find some really good info.  Good Luck
~Tascha

[PPhelps]

I feel your pain. My pain started again a month after my Diag. Lap in April. And has progressed to constant pain now in my hip. All the doctors tell me is its IBS. I'm not disputing the IBS for maybe the constipation, direhea (sp), and bloating. But what about the pain. They're consentrating on the bowel symptoms but not the pain. When I mention hip pain. They ask where and that's about it. I can't walk for long periods of time anymore. We took the kids to a picnic after two hours. I said I can't walk no more we have to go home. I had to take vicodin just to get some sleep that night. Sometimes its like talking to my 3 year old. In one ear and out the other. They hear what they want to hear. Just keep chugging along. I have a colonoscopy Thursday. They all want to tell me I have IBS, but give me nothing for it, they just tell me to fiber up. I don't think they'll be happy until I'm swimming in fiber supplements.
I'm sorry I just started ranting there. Stay on those doctors.

Paula

[dian07]

Geeze...I feel so bad for you guys....wish I could do something to actually help......the only thing I can complain about is a broken leg....and that is "just a broken leg"....after what I went through and the hell you guys are temporarily trapped in my hastle is nothing....just keep talking until somebody gets to the bottom of your symptoms....neither of you are "complainers" or hypochondiacs...don't let them get by with the proverbial "pat on the head"....easy for me to say...I am not suffering and eshausted from dealing with pain......please know we are here and would be there with you guys if logistics weren't against us!
Hang in there and stay in touch....
Peace.
dian

[shazzybow]

well done gatsby i remember body rolling being mentioned in a post a few weeks ago and i couldnt remember what it was called i thought it sounded very interesting.it would be useful to have some info on this, is it difficult to do if your in a lot of pain?sharon.

[baguba]

I feel so bad for you.  I don't need to take any pain medication - yet; but I too,am having similar symptoms.Had surgery to remove 3 implants and my spleen on 5/30/06.(Recurrence from 2002 diagnosis).Surgery went excellent - all localized, paths all clear.But I have been "complaining" about a dull ache where they removed my spleen, and this has been going on since surgery.It subsides at times,but gets very aggravated 5-8 days after my chemo treatment.I am taking my 5th treatment of 6 on 9/11.The problem is that I don't want to sound like a hypochondriac, but I'm worried 24/7.They did do a CT scan (chest/abdomen/pelvic)after my third treatment because I persisted that I was "uncomfortable", all were negative and my CA125 is down to 6.  But, geez....I know how I feel. I don't know what it could be.  My surgeon said there was no way I did not have a ton of adhesions (thanks a lot) from the extent of original and this past surgery.  But I don't know how to differentiate what adhesion pain is like.  Does anyone have any insight for me.  Gosh, I'm sorry I babbled on about my problems -I wanted to give you support.  Maybe knowing there's others out there in the same boat will be comforting to you.  We just need to keep plugging away.....God Bless and keep in touch.  I go for blood work tomorrow, somaybe I'll mention this feeling again to whoever will listen.

[shazzybow]

sorry to hear that your having such a frustrating time, there is nothing worse than constant pain. what did you have your original surgery for?i have heard that you can sometimes get adhesions following surgery that cause pain but this is just guessing, sounds like you need to keep seeing your doc until you get some answers, good luck.

[Mommaof5]

Bless your heart, that has to be discouraging. You keep being persistent, pain is the bodies way of letting you know something is wrong. My GYN did say that there are microscopic spores that they can't always remove because they can not see them and that hormones can trigger those spores to start growing. In the past I have felt  like I was being a bother to my doctor and I didn't assert myself enough and that's not a good thing. You know your body better than anyone else and you know when something is wrong. You are worth the extra tests, it is better to be safe than sorry. I'm like you, I don't want to take some pill to mask the pain I want to get to the source of the pain...I hope you get some answers and relief soon.:)