Rereading Pathology and nerves

[OzBron]

I recently relocated to the US from the UK. I just finished chemo at the end of Sept (CarboTaxol) but have not had a post chemo scan/CA125 as my UK Onc suggested waiting till I moved so that all my followup will be together.
Because of the move, I managed to get hold of my records including my pathology report. I read the pathology report and am now I'm a bit worried. They took 17 samples for pathology and reading through the initial comments were all stated as high grade serous papillary carcinoma (with a adenocarcinoma thrown in?). Just 4 samples were sent for histopathology and after this section in the report they conclude that "probably best downgraded" to MSPC with invasive implants. I thought that the hard bit was differentiating MSPC from Borderline, not MSPC from fully frankly malignant or high grade OVCA? I don't like the words "probably best"!!!
I am now set to see a new gynonc here in NJ, US and they have provided me a form to allow them to request pathology and to reread the pathology. What does this mean? Does this mean they get the actual samples sent over from the UK or do they just get microscope pictures that they can review again? There is a comment that insurance may not cover it so I am worried that it will be really expensive to send from the UK, but I will feel better if someone else looks at them and takes the "probably" out of the equation.
I am getting quite stressed out worrying about my first followup. As much as I try to listen to the rational me, the worrier intercedes and stresses me out! Please think happy thoughts for me on wed and any help with understanding the comments on the pathology would be greatly appreciated!

[rmarie]

The form is probably a standard form used in the US.  I would not stress until I went to the appointment and talked with them.  Many people in the US do not have their records to take with them, so it is on all forms, that they look for permission to get your other records.  Since you are carrying yours with you, it may not be a problem.  I read the recommendations from the cancer society when I was diagnosed and I have a copy of everything.  When I go on vacation I carry my book with all my records in it, just in case.  It is difficult to contact a physician when you are out of town.  Also with our privacy laws, HIPPA, it is easier for you to carry your records from place to place, Doctor's appreciate it.  You are coming from  a computerized system to more of a piecemeal system, and they try not to cover much.  Having OVCA, moving and having to find a new GYN/ONC is enough of a stresser, relax, take the records you have and deal with it from there.  Welcome to the US, you will understand our health care system sooner than you want to.  
Marie

[Angie_Lou]

Was your pathology report done after surgery or just a biopsy?  I don't have my pathology report handy and as soon as I go back home tomorrow (visiting with my sister today), I'll take a closer look so we can compare notes.  I had surgery in April.

It seems wrong that the insurance company will not cover the requested material to be sent to the doctor in NJ US from the UK (whether written or actual samples.)  However, the samples will be considered bio-hazardous and this may be expensive to import.  I think you need to ask the NJ doctor what specifically he/she wants sent from the UK and if it is samples, contact the insurance company to see if this is covered and if not, why. Please come back to us on this.  I am in the intl forwarding industry and will try to help in anyway I can.  Angie

[Brownie3321]

POSITIVE thoughts!! Keep your mind positive, the body will follow. I'm sorry I can't help further, I don't understand all the lingo in your path report. With love, Deandra

[Danimatt]

I am definetly thinking happy thoughts for  you.  I am sorry but I don't understand the path report as I am not a doctor or a nurse.

Keep us posted.

Hugs