Need alittle more help/advise

[henning]

Hello, I have learned so much from all of you.  I am going to my appt. March 24th w OB/GYN that day I will have the sono done than the Dr. will come in and explain what he saw..  I have to have a urine test done because i go alot. If any surgery has to be done I will be going to Roswell Park Cancer Inst.  they have a GYN/ONC (they done my breast and lymph gland removal about 12yrs ago). I dont have anyone to come w me to either appt so i read that i can take a note pad and write down things (havent told my husband anything, he is in the airforce and has enough to worry about). What kind of questions do I ask at my appt the 24th? And this sounds crazy but did the LPN find something that made her order the sono? She did a pelvic exam. She didnt say anything and I didnt ask.  This is what I mean, I dont ask or I go blank.  It is frustrating for me.  I am learning to become my own advocate, I just need some more help.   Penny

[henning]

Waiting is the hardest but with all of you here make it alot easier.  I dont think all of you really believe in the empowerment that you give us new to this form. It is just amazing. My appt that day is going to be fast I do the sono and have the Dr appt right after and if anything is found they will fax everything over to the GYN/ONC that day. So there is no waiting for this part. I am more disgusted with not being able to eat (full feeling all the time even with drinking water) and being bloated and I am on the constipated side. I wake up about 2-4 times to urinate and i still feel i have to go. A few days ago I had diaherra so bad I couldnt hold water down without it going through me it its just annoying like a mosquito flying around my head. Lol. But i have everything I need right now...all of you, grandkids, cat,and a bright sun shinny day! Couldnt ask for more!  Thank you!
Penny

[jane65]

Hi Penny, I wish you the very best of luck at your appointment. I truly hope that the results of the tests are that no cancer has been found.
It's a shame that you don't have anyone to go with you, but we'll be there with you, yes bring a pad and remember to get copies of the test results, and the doctors findings and recommendation.
Waiting is the hardest, it's a little more than a week away, try to stay busy until then
Jane

[henning]

The waiting is the worst, especially at nite.  I have managed to clean out my closet and I had my grandson for the weekend, he brings so much sunshine.  I was thinking about getting a OTC sleep aid to help not sure though. My husband has a trip this week so he will be gone for awhile. I havent worked in my studio for awhile but my cat keeps me company. I read posts on this site, I had to laugh one day-someone put on pet peves and different ones were replying that was refreshing especially becuz of the seriousness of the forum.  I was on another forum hyster. and a lady had been put in the hospital and on suicide watch becuz of her surgery she was having mon. I think this forum is great I wouldnt be here if I didnt need to be but I am grateful there is a place to go.  I had aunts on both sides of my family die from this (70's) i couldnt imagine how they must of felt not having anyone to talk to.  I worry but not I'm not alone.

[gls2824]

Waiting is the hardest and no matter what we try and say to reassure you, you are going to worry.  We've all been there.  The appointment date will be here before you know and it then you'll have your answers.

Just take care of yourself and make sure you get enough sleep and nutrition.

[henning]

Good morning Dian,  Thank you for your advise.  It has put me at ease.  I havent told my husband because I didnt want him to feel the anxiety that I am feeling.  After I find out what is going on for sure, than I can tell him and i will have all the information.  We have had to deal with crisis before (death of his brother from cancer) they allowed 3 days for him to come home.  If I need anything done this is the best year to have it done, he will probably have to leave Feb. 2010 back to Afgh.  Ladies like you are my strength for helping me through this it is the waiting that is driving me crazy, the not knowing.  Once the sono/dr appt is done than I can say alright, this or that needs to be done.
Thank you.
Penny

[dian07]

Procedures are so different now than they were in 1985 ..... I am certain you will recover much more quickly.... plus, hopefully, this will be a much less complicated procedure.
Now, about not telling your husband...... this journey, called "life" is what you are promising to share with him.  Are you sure it's a good idea to leave him out of all this?  I know my husband and sons would be so disapointed in me if I kept something like that from them.....for them to think I didn't think they could handle it.....or to presume thay had enough to deal with that I had to protect them .....I don't know.... it would be a mistake in my world.
Anyway, good luck.  You can always take one of those little voice reactive recorders in with you to your appt
Peace.
dian

[henning]

Thank you for your response.  I had a emergency hyster. in 85 (was 26 yrs old) when i woke up I had a tube down my throat, over 50 staples starting from my belly button down, left side ovary, uterus, portion of the rectum and large intestine, appendix and i had a cathader in and all the plumbing inbetween.  I spent over two weeks on the maternity ward and could hear the babies. I was left w one "healthy" ovary and after 24yrs that is the one giving me guff.  My biggest fear is that if they have to go back in to fetch it for some reason, is it going to be that painful again? it took me almost a year to completely heal from that surgery.  I'm scared about that.

[gls2824]

Hi Penny.  Taking notes is a good idea.  I think the doctor will probably tell you what they saw/think they saw and that will answer a lot of your questions.  They will tell you your options.  You don't have to make a decision immediately.

The LPN might just be cautious.  When my gyn ordered the sono, she was just trying to check the position of my cervical polyp before the D&C.  The ovarian mass was a complete surprise to everyone.  

What you ask depends on what they see.  It may be nothing.  gynocs see these tests all the time and they have a pretty good idea what they're looking at.  Of course, nothing is certain until they get in there, but maybe you won't need surgery at all.

If they start rattling off options, ask the doc what he/she would recommend if you were their sister/wife/mother, etc.  I decided on the most radical because of my age, but there are always options.  Good luck!