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confused mucinous borderline tumor
Hi, i have joined this site hoping you could please give me some advice about whether the treatment i am recieving is normal procedure.
In December i was rushed to theatre in extreme pain with the ultrasound showing large ovarian cyst. After having a laparotomy done the surgeon told me i had a large cyst filled with fluid which he drained and removed,also he had removed my right ovary which was badly twisted.The surgeon told me he then removed a tumor which was cancer.
After hearing that dreaded word and not knowing much about Ov ca i did not ask where the tumor was removed from, whether it was from the cyst or ovary. He referred me to a Gyn oncologist who looked at slides and told me it was a "mucinous borderline tumor".
I told the oncologist that from what i was told i thought the tumor came from my ovary,and he said my cyst would of been half fluid half solid.
He ordered an ultrasound of my appendix which came back looking of normal shape.
A copy was sent to my normal Gp (at oncologist request) who told me i should have a laparoscopy done as he said there was no mention in my report from surgeon of my ovary also there was no grade done.
I am now left so confused with my Gyn oncologist saying he does not want to see me for 3 months as my ultrasound looked normal of my appendix..and
my regular Gp telling me my tumor would not of came from my appendix but can spread to it.I have also been told that a "mucinous borderline tumor is benign" Is this correct?
Sorry for such a long post but i just am at a loss as to what i should be doing!
Please help,any advice at this point would be greatly appreciated!
In December i was rushed to theatre in extreme pain with the ultrasound showing large ovarian cyst. After having a laparotomy done the surgeon told me i had a large cyst filled with fluid which he drained and removed,also he had removed my right ovary which was badly twisted.The surgeon told me he then removed a tumor which was cancer.
After hearing that dreaded word and not knowing much about Ov ca i did not ask where the tumor was removed from, whether it was from the cyst or ovary. He referred me to a Gyn oncologist who looked at slides and told me it was a "mucinous borderline tumor".
I told the oncologist that from what i was told i thought the tumor came from my ovary,and he said my cyst would of been half fluid half solid.
He ordered an ultrasound of my appendix which came back looking of normal shape.
A copy was sent to my normal Gp (at oncologist request) who told me i should have a laparoscopy done as he said there was no mention in my report from surgeon of my ovary also there was no grade done.
I am now left so confused with my Gyn oncologist saying he does not want to see me for 3 months as my ultrasound looked normal of my appendix..and
my regular Gp telling me my tumor would not of came from my appendix but can spread to it.I have also been told that a "mucinous borderline tumor is benign" Is this correct?
Sorry for such a long post but i just am at a loss as to what i should be doing!
Please help,any advice at this point would be greatly appreciated!
Hello,
I also was diagnosed with a mucinous borderine tumor and had a complete hysterectomy. My Gyn. Onc. at MD Anderson suggested that as a follow up I have a ct scan every 3 months for the 1st year, every 4 months the 2nd year and every 6 months for 3-5 th years. Also having ca-125 and a cea test done on same interval. It was during one of my ct scans that new tumors were discovered...thankfully very early and my prognosis is great. My cancer is acting unusual so don't assume you will have a recurrence but I strongly believe there should be some type of follow up. Also if you don't have a copy get a copy of your pathology report. I strongly suggest a second opinion. I went MD Anderson for my second opinion...I see from your proile you don't live in the US but I would go see another Gyn. Oncologist at a cancer hospital if you can. They may say the same thing your local doc said but peace of mind is worth it. Good Luck. Julie
I also was diagnosed with a mucinous borderine tumor and had a complete hysterectomy. My Gyn. Onc. at MD Anderson suggested that as a follow up I have a ct scan every 3 months for the 1st year, every 4 months the 2nd year and every 6 months for 3-5 th years. Also having ca-125 and a cea test done on same interval. It was during one of my ct scans that new tumors were discovered...thankfully very early and my prognosis is great. My cancer is acting unusual so don't assume you will have a recurrence but I strongly believe there should be some type of follow up. Also if you don't have a copy get a copy of your pathology report. I strongly suggest a second opinion. I went MD Anderson for my second opinion...I see from your proile you don't live in the US but I would go see another Gyn. Oncologist at a cancer hospital if you can. They may say the same thing your local doc said but peace of mind is worth it. Good Luck. Julie
I had a low malignant potential ovarian mass (otherwise known as borderline). It was not mucinous (sorry, can't remember the term for it), but I had a radical hysterectomy done. My gynecologic oncologist, who is one of the best in the country, emphasized that this is NOT cancer since the cells are atypical and not malignant. However, it is also not "benign." It's somewhere in between. The treatment is follow up exams. He said that if it reoccurs in "20 or 30 years" it will again be a borderline mass.
You definitely need a second opinion and with a doctor that can speak coherently about your situation. Although a lot of oncologists remove the appendix during a radical hysterectomy, I can't believe they are focusing on this or using it as a justification for the diagnosis.
You definitely need a second opinion and with a doctor that can speak coherently about your situation. Although a lot of oncologists remove the appendix during a radical hysterectomy, I can't believe they are focusing on this or using it as a justification for the diagnosis.
That is just messed up. It is definitely NOT correct that mucinous borderline tumors are benign. I didn't look at your profile but by the use of the term "theatre" I am assuming you are not in the U.S. Is there any reason you can't get a second opinion? You need one Dr who can tell you what is really going on. I can't believe that they can't even tell you where the tumor came from and it is outrageous that there would be no mention of it
in the report. I have full blown cancer and not once was my appendix ever an issue. You need help that you are not getting and you need to fight like crazy to get the help you need. Below is a website that has a lot of info on this topic that I think will help to explain things to you better than your Drs did. Good luck to you.
Jan
ovariancancer.jhmi.edu/lmp.cfm
in the report. I have full blown cancer and not once was my appendix ever an issue. You need help that you are not getting and you need to fight like crazy to get the help you need. Below is a website that has a lot of info on this topic that I think will help to explain things to you better than your Drs did. Good luck to you.
Jan
ovariancancer.jhmi.edu/lmp.cfm
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