Hi all,
Just a update.
Finally got x rays given to me after years of asking and results came back and show I have Sacroilitis. So you were right Tuckamore!
Been booked into see a Rheumatology physiotherapist next week so hopefully this will be the start of my long awaited recovery now that we have something to work with.
Hope Dontunderstand you have found a answer with your issue, keep us posted.
take care.
Thank you for your concern! I have answers, I just feel like I'm missing something. I have endomitriosis, polycistic ovarian syndrom, irritable bowl, and intercystial cystitis. I just feel like it's all tied together by something I'm missing. Like how does one go from being completely healthy to all these digestive and reproductive problems. The pain is being managed, sometimes very well sometimes it feels like not at all but I'm going in for a neurostimulator trial in May and I also have a list of other things I would like to try soon before we do a permanent implant.
I also have a very supportive mom and an awsome boss. The kind that when I need to go home early always asks if I need a ride home... :)
So while I am often frustrated I do try and keep a positive outlook.
I do hope you can find what's wrong and like I said if you feel like your doc isn't really hearing you go get a second opinion. I never even went to my post op from my first laparoscopy because the doc told me the pain was all in my head over the phone. You know what you're feeling.
Good luck and keep us posted!
sorry forgot to add my doctor does not think a MRI scan will show anything so therefore will not send me for any scans and I had lots of blood taken they tested around 5-6 bloods but the haemoglobin was the only low one, doctor said it should be 13.3 but mine was showing 12.6. He said there was nothing to worry about.
Thanks for the replys guys glad to see it is not just me that can not get answers.
Tuckamore I would say the adductor magnus is the muscles that is hurting me. It just becomes frustrating as its affecting my whole life like how I walk, how i sleep and can not play football. Just hope that the rheumatologist can find a anwswer. How cured are you since you were told you had SIJ Dysfunction? how your well now.
Dontunderstand thank you for your offer on the pm, my god you must feel lost with yours 5 years with no answers and past from pillar to post thats not good for anyone. How are you now? have you found a answer to what was causing your symptoms?
All my pain is localized in my abdomen. I have endomitriosis, PCOS, IBS, and IC. I'm no expert by any means and I don't personally suffer from back or knee pains but I have been to two gastros, one urologist (great doc!!!), and 3 obgyns. Because of my age 28, was 23 when all this started) I think docs were easily dismissive and I leaned a login my mom to help mentally while I felt like I was being tossed from one doctor to another. I know how exhausting it can be!!! I also know that only you what you are truly feeling and don't give up. Keep searching till you find someone who is willing to listen and really hear you. I've gone through some real jerks and have also found some great physicians! And in the meantime find someone who will help you manage your pain.
Please pm if you need someone to talk to!
Please keep us updated!
Hi Owensey,
Welcome to MedHelp's Pain Mangement Forum. I am glad that you found us and took the time to post.
Until you mentioned a stiff shoulder I was thinking you may have SIJ (sacroiliac joint) problems. Your pain sounds very similar to mine and I have SIJ Dysfunction. Ppl with SIJ issues can usually point to the exact location in the gluteal area where the pain originates. Pain can travel down the anterior portion of the leg and on the outer aspect of it. It can also radiate into the groin and into the knees and sometime even into the calf and foot.
Which set of abductor muscles are causing you pain and problems? There are several sets of them.
I know that two months seems like a long time to wait however in my opinion consulting with a rheumatologist is the next best step. Your pain seems to becoming more generalized rather than localized. I would assume that the rheumatologist will look for an inflamatory disease process and possibly consider Fibromyalgia or a similar conditions. Did your PCP run blood levels to check for an inflamatory disease?
Have you had an MRI of your spine? Again your pain seems more generalized at this point but it may be beneficial to have a detailed look at your spine.
Waiting for answers or a diagnosis can be agonizing and frustrating. I can empathize with you. I hope that your pain is being managed in the meantime. Please let us know how you are doing. We will look forward to hearing from you again.
Take Care,
~Tuck