I really need some some help or guidence of anyone who can help or have had the same symptoms.
I am 28 yrs old and am a healthy active person but for some strange reason have developed pains and stiffness to my lower body and no one seams to have a answer,
It started two years ago as a pain in my right butt cheek which felt like a dull ache and hurt with movements especially with walking or running. It then developed into lower back pain and a painful right adductor muscle pain which was only sore when moving or when lying in bed where then I then seeked medical help. I was sent for a course of physio were my symptoms did not improve so my doctor referred me to a specialist who thought the pain was due to a hernia. I had a operation and the doctor said that no hernia was found and was referred back to my doctor.
My doctor then resent me back to physio were my problems have worsen. I perform stretches every day as instructed by physio but it is not getting any better. Since the pain in my right cheek it has spiraled were I now have left and right painful adductor muscles(I can not squeeze items together), my lower back feels tight when leaning forward, I have pain to my right semitendinosus muscle near to my butt cheek and painful knees were I experience pain to the back and the sides of both knees and I am now experiencing a left stiff shoulder feeling and find it hard to raise above my head.
I suffer pain everyday as all my pains are in muscles that are always moving. I limp when I walk and can not bend down as my groins and my semitendinosus muscles restrict me to. I have have had blood tests recently and doctor said my haemoglobin blood is low but nothing to worry about and has no referred me to see a rheumatology doctor which is a 2 month wait.
Does anybody know what is causing these pains and stiffness?? it has been going on to long now and neither my GPs or physiotherapist know what is wrong and it is really getting me down.
additional info - My physio said to get active and start running which I did but when running pain starts in my butt cheeks and hamstrings and I feel like I have been winded in my lower back, it has also affected my sex life as groins ache and lower back pains.
Thanks in advance on any help given, much appreiciated.
Welcome to MedHelp's Pain Mangement Forum. I am glad that you found us and took the time to post.
Until you mentioned a stiff shoulder I was thinking you may have SIJ (sacroiliac joint) problems. Your pain sounds very similar to mine and I have SIJ Dysfunction. Ppl with SIJ issues can usually point to the exact location in the gluteal area where the pain originates. Pain can travel down the anterior portion of the leg and on the outer aspect of it. It can also radiate into the groin and into the knees and sometime even into the calf and foot.
Which set of abductor muscles are causing you pain and problems? There are several sets of them.
I know that two months seems like a long time to wait however in my opinion consulting with a rheumatologist is the next best step. Your pain seems to becoming more generalized rather than localized. I would assume that the rheumatologist will look for an inflamatory disease process and possibly consider Fibromyalgia or a similar conditions. Did your PCP run blood levels to check for an inflamatory disease?
Have you had an MRI of your spine? Again your pain seems more generalized at this point but it may be beneficial to have a detailed look at your spine.
Waiting for answers or a diagnosis can be agonizing and frustrating. I can empathize with you. I hope that your pain is being managed in the meantime. Please let us know how you are doing. We will look forward to hearing from you again.
All my pain is localized in my abdomen. I have endomitriosis, PCOS, IBS, and IC. I'm no expert by any means and I don't personally suffer from back or knee pains but I have been to two gastros, one urologist (great doc!!!), and 3 obgyns. Because of my age 28, was 23 when all this started) I think docs were easily dismissive and I leaned a login my mom to help mentally while I felt like I was being tossed from one doctor to another. I know how exhausting it can be!!! I also know that only you what you are truly feeling and don't give up. Keep searching till you find someone who is willing to listen and really hear you. I've gone through some real jerks and have also found some great physicians! And in the meantime find someone who will help you manage your pain.
Please pm if you need someone to talk to!
Please keep us updated!
Thanks for the replys guys glad to see it is not just me that can not get answers.
Tuckamore I would say the adductor magnus is the muscles that is hurting me. It just becomes frustrating as its affecting my whole life like how I walk, how i sleep and can not play football. Just hope that the rheumatologist can find a anwswer. How cured are you since you were told you had SIJ Dysfunction? how your well now.
Dontunderstand thank you for your offer on the pm, my god you must feel lost with yours 5 years with no answers and past from pillar to post thats not good for anyone. How are you now? have you found a answer to what was causing your symptoms?
sorry forgot to add my doctor does not think a MRI scan will show anything so therefore will not send me for any scans and I had lots of blood taken they tested around 5-6 bloods but the haemoglobin was the only low one, doctor said it should be 13.3 but mine was showing 12.6. He said there was nothing to worry about.
Thank you for your concern! I have answers, I just feel like I'm missing something. I have endomitriosis, polycistic ovarian syndrom (syndrome), irritable bowl, and intercystial cystitis. I just feel like it's all tied together by something I'm missing. Like how does one go from being completely healthy to all these digestive and reproductive problems. The pain is being managed, sometimes very well sometimes it feels like not at all but I'm going in for a neurostimulator trial in May and I also have a list of other things I would like to try soon before we do a permanent implant.
I also have a very supportive mom and an awsome boss. The kind that when I need to go home early always asks if I need a ride home... :)
So while I am often frustrated I do try and keep a positive outlook.
I do hope you can find what's wrong and like I said if you feel like your doc isn't really hearing you go get a second opinion. I never even went to my post op from my first laparoscopy because the doc told me the pain was all in my head over the phone. You know what you're feeling.
Good luck and keep us posted!
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