thanks again for your replies. jaded, sorry not to get back about the mri. yes i have had them and still they aren't sure. i know i said that i have increased my meds and this has caused some concern with a few of you. i saw my doctor on wednesday and mentioned to her that i had increased my meds and she was fine about it. she has been kept informed by the hospitals about my progress and said it was ok. she says that she trusts me and has given me a 30ml bottle of concentrated oramorph instead of the 3 x 500ml bottles of oramorph i usually get. the concentrated one is much stronger and instead of taking 20ml every 4 hours i only have to take 1ml every 4 hours.
I'm glad that your pain is finally under control! My only concern for you in increasing your dose and not seeing the doctor is that you may run out sooner than you are supposed to and then have to go days without meds and possibly go into withdrawls.
I think I keep asking you this, but have you had an MRI at all? I know you were supposed to have one in the A&E, but they weren't able to do it or something. Please keep pursuing it because it may be the only way to diagnose what's causing this pain and get to the bottom of it.
I'm VERY glad you're not in overwhelming pain lately, though. I know how absolutely despairing that can be.
Hi Nez,
Thanks for the update. For may of us our pain will never "go away." Controlling it to functioning level is the best that we can hope to achieve. I am glad that it is once again tolerable for you.
I did note that you stated you have not returned to your physician. Did you mistype or am I misunderstanding your post? I would caution against increasing your medications without the approval of your physician(s).
I know what you mean when you say you are finally able to think about something other than your pain. Uncontrolled pain dominates our thoughts and lives. Having it brought to tolerable levels can make a huge differance.
Please continue to let us know how you are doing. I am thrilled if any information or ideas you gathered here was useful. We are always available to you, even if it is to "talk." I know well how beneficial just venting and sharing can be.
Take Care,
~Tuck
Good to hear you have some relief.
I'm glad to hear your pain is FINALLY under control. That's a huge start.