This patient support community is for discussions relating to the challenges of parenting
toddlers (age 1-5), including physical, speech, sensory, cognitive and emotional development, choosing a daycare/nanny, games & activities, and toilet training.
The first time it happen he had a fever. I told my doctor and she told it was noting not to worry. Now it's been happening just about every day. The thing that is strange to me is he acts fine while it is happening.
Please let me know what happens.
its not normal, it has to be looked into.. cold or not is irrellivant.
I have decided to take matters into my own hands and order a portable pediatric pulse oximiter (easy to find if you Google it). The problem is, her lips are never blue anymore by the time I take her to the doctor. The only way to know if her oxygenation levels ar really affected during these blue spells is to get a reading with a puse oximeter when it's happening. They're not that expensive. I found some as low as $68.00. I'm going to ask her pediatrician to prescribe one first, so insurance will pay for it, but if he won't, I'm going to buy one myself. It's the only way I can put my mind at ease if I can't get a real answer from our doctor. I know about all of this because I am a Cardiac Cath Lab technologist myself. If the pulse oximeter reads fine, and her oygen levels are normal during a blue spell, I will not be so worried.
I would be curious if anyone got any answers...I did like the idea of sleep apnea (not sure why I did not look into that myself)
She has a hole in her heart, where her oxygen depleted blood gets mixed in with the oxygen rich blood - a common heart problem that has no cause - ie my pregnancy was healthy, I am a non-smoker, non-drinker etc and followed the rules of pregnancy to the letter so i was upset to find she had a hole in her little heart, but as I said this is a fairly common problem.
Whenever she was over exicted or involved in activities which would elevate her heart rate she would turn blue around the lips and in the extremities. This was simply a matter of the heart beating faster, pumping the oxygen depleted blood around her body, and we were simply told in these times to try and calm her down a bit. We have been monitered regularly by a cardiologist, and have regular scans of her heart - this hole can cover over by itself, and if it does not happen by age five, they give the child surgery where they insert a little umbella like plug over the hole. They do not die from this condition, but it needs to be addressed as the blood leaking into the opposite side of the heart can cause one side of it to enlarge, making the child susceptable to problems such as arythmia(sorry medical spelling not that great) and other heart related problems in adult hood.
Generally if you have the same condition they will get you to monitor it, teach you to manage the condition with your child as they regularly check the condition. If it has not cleared up by around 5 years of age they will suggest surgery. As it stands my little one will be receiving surgery later this year.
Hope this helps and gives you a direction to point your doctor in to check off this list.....
Good luck everyone.
Kelly
My husband is a wonderful physician and I do trust his training, however I am horribly worried.
I would love to know if any child was actually diagnosed with anything.
thanks kristy
Her heart is fine, her blood work is fine - so no reason for this to happen.
It stopped for about 9 months and last night, while I was changing her nappy, her lips turned blue again. She has a cold. Brought her to the doctor and he said these synaptic episodes are nothing to worry about... ha!
This morning, taking her out of her car seat, I noticed her lips were blue again! They stayed blue for approximately 15mins. I find it all very worrying but am somewhat calmed by the amount of parents going through the same thing.
I find that unless she turns blue while I'm actually WITH the doctor, that they look at me as though I am just some over protective parent.
I am taking her back to the doctor this afternoon as I am so worried... will let you know how I get on.