Answers for my daughter

[chicky1]

My daughter was born a healthy 6lb 11oz baby.  When she was 4 months old she lost a whole bunch of weight.  They diagnosed her failure to thrive.  They ran some tests on her and nothing yet.  They tested her for Cystic Fibrosis and did a lot of blood tests.  She is now 5 weighing 30 pounds.  This is the first year she is on the growth chart. She has constant stomach pains, refusal to eat cause she is affraid of it hurting.  She has bowel movements a lot, which some have been bloody.  I myself have an enzyme deficiency.  The dr.'s say no.  They look at her now and say she's fine and look at me and say well your tiny so she will just be tiny.  They don't listen to the symptoms.  I live with a 5 year old that is scared to eat cause she will have pains and go to the bathroom one more time.  She doesn't really complain about it cause she has lived with it her whole life.  It's sad to watch her.  I want to know what's wrong with her.  The last xray showed constipation.  The dr. said oh she probably just suffers from constant constipation.  Could that be the whole reason she was failure to thrive?  I had an opinion about crohn's disease.  Could that be another reason?  

[brookie825]

its sounds like your daughter doctor dont have a clue. I would find a different one.and just remember doctors work for you!you make thier paychecks so bug them till they find out whats going on and they make your daughter better. good luck and god bless

[pureFEVER]

I had something similiar with my daughter when she was 4 months old. I was breastfeeding and she didnt gain weight that whole month.Well after much debate with the doctor and test she was diagnosed with acid reflux. She was having projectile vomiting with that and some other symptoms.. it just maybe something to look into.. She weighed 9lbs 12 oz's at birth..

[mommyofnathan]

Hi,

My husband's niece's child has Crohn's disease and your child's symptoms sound awfully similar.  She was 12 when they finally diagnosed her.  She is currently on the right treatment (had a surgical procedure as well, think they removed a part of the inflamed colon) and has gained weight finally.
Try to get her to a Gastro surgeon.  Stamp your foot until you get treatment for your daughter.  She shouldn't live like this.  Lilly has only now started living and she is 13 this year.  Too sad.  

[miscdesign]

I agree with RockRose, if you can get another Dr. I would.  Could she have a food allergy? Allergic to Lactose, I'm dealing with that one myself (for my son) right now.  His stomach always feels yucky, and it makes him constipated, also gives him gas (sometimes painful).  I would definitetly get another opinion with this one, if you are able to.

Good Luck

[RockRose]

Chicky,  "failure to thrive" isn't a diagnosis,  it's an observation.  It's like saying   "that baby isn't growing".  

Your post sounds so painful.  I don't understand why you aren't getting better help from your daughter's doctors!  Are you on some kind of assistance program where the doctors have no real reason to follow up - they just pass you along?

I can't imagine my son's pediatricians ignoring all of this and acting like nothing was happening.  Do you have the option of choosing a better doctor?

Yes,  it sounds like this could be Crohn's disease,  or any other of a long list of digestive disorders that a doctor should care enough to follow up on.  GRRR.