Is it possible to have PCOS and Endometriosis?

[painpaingoaway]

So I already know that I have PCOS, but my mom and grandma both had severe endo! I have researched both conditions, but PCOS never talks about chronic pain before,during and after menstruating, and pain during and after intercourse. My bowels are very messed up and I get really bad pain in my rectum. That is where my mom had a lot of it. I have no idea. None of my docs will do laparascopy. I have only had one U/S and a very long sharp vaginal probe, I forget what that is called. My blood clots are gigantic and never ending. I need some input from you intelligent ladies!!! I have been on the pill for 8 days now and can feel my cysts filling and popping! So much relief afterwards though.

Bethany

[re74728]

I was diagnosed with pcos about 7 yrs ago and was told that is why I have been a type 2 diabetic since my teens.  My periods have always been difficult especially in the last 5 years.  My GP kept putting my problems and the fact that it was taking me so long to get pregnant, down to pcos.  When I moved to a new country I was immediately diagnosed with endometris and everything made sense.  How I had been misdiagnosed for all those years is beyond me as I had all the classic symptoms you mention!  It probably has a lot to do with the fact that I was living in the UK and it is hard to get referred.  I ended up having an operation and one year on finally fell pregnant!  I am currently 5 days away from my caesarean (the baby is breech!) and will be going on metformin.  I believe both conditions are connected and really pleased to have finally been diagnosed but it was a pity that I had to wait so long and have my first child so late.

[liane72uk]

I have been diagnosed with PCOS through blood tests recently. At the age of 15 I started having all the usual things for PCOS and Endo. THe docs were convinced I had endo but ignored the signs of the PCOS. I had a lap done and the doc said he 'couldn't find any endo' not that there isn't any. I have read about lots of women where the endo isn't found until the 2nd or 3rd lap. I assumed that would happen with me and kept trying different pills Mirena and injection to help the pain and bleeding. Now I have been diagnose with the PCOS I am hoping they will look again into the endo. Rather than not having many periods mine were always there! Sometimes for a couple of months, sometimes a little late but always there. And very VERY heavy and painful. I also have pain during sex and have had massive weight gain since coming off the pill and going on to Mirena and injections. I am now on no birth control and watching what I eat. My weight is slowly but surely coming down, much easier now I'm off the injection!!

Does this sound like it could be just PCOS or does it sound like another mixture of the two?

Thanks in advance for the help

Liane

[Crystal1988]

Yes, it is possible to have both Endometriosis and PCOS. I was diagnosed with PCOS when I was 14 years of age and last year (I was 20 years of age) I was diagnosed with Endometriosis. It does sound like you do have Endometriosis along with your PCOS. I would find a doctor that is willing to help you find the answers you are looking for in your health instead of worring about their pocket book. To me, it sounds like the doctors you have gone to for help have just pushed you aside. I went to several different doctors and went through so many ultra sounds to find "cysts". The doctors couldn't find a cyst, so they dismissed my pain as it "being in my head". I was going to give up and "deal" with the pain, but a good friend of mine talked me into going to see this specialist. He also did an ultra sound and he also found nothing, but instead of dismissing my pain, he went the extra step and told me he would like to do an exploratory search. It is an outpatient proccedure. Turns out that I had a cyst erupt, which forced my folopian (I dont know how to spell that) tube to my uterus, there was scar tissue holding it there, and I was covered with Endometriosis. The doctor cleared as much as he could of the Endometriosis, freed my tube, and cut away all the scar tissue. So, dont give up. Find a doctor that will listen and will do anything he/she can to help. God bless you hunny!

[sarah1808]

I, too think I have both endo and pcos.  I have been getting rupturing cysts on my ovaries since I was 13, and have been on and off the pill.  I have always had painful, long, and heavy periods.  During my time of the month have pain when going to the bathroom, and lots of pain during intercourse.  I am having a lap on Tuesday to remove anything that needs to be removed!  I am very happy I am not alone, and so happy to find this web page....I wish all the best to all of you with the same complications I have.

[amb84]

I was diagnosed with PCOS at 16 and endo at 20. It sounds like your obgyn is right as you could see them on the US, it is possible to have PCOS without symptoms, my BMI is 20 so i am def not overweight, i do not have acne, i am hairy but not on my face although without the pill i do not have periods. Falling pregnant is hard but not allows impossible, i have a son. Your doc is again correct about not treating the PCOS unless trying for a baby as all treatments can result in pregnancy and are only meant to be taken short short term, they just like you to have periods so therefore the pill. Just bare in mind that when you want kids speak to your doc asap as treatment on the nhs is very slow. Dont worry PCOS is very common.

Good Luck

[fedup549]

I was diagnosed with endo about 8 years ago and did the laparoscopy about 4 yrs ago. Been on Birth control ever since only stopping every 4 months to get my period although get it many times with the pill as well. The doc says this will decrease the chances of the Endo coming back as it was stage 3. Well i still have sever pain, very lose bowel moevements frequently as well as pain during intercourse.
I went to the Obgyn today for a check up (not my regular doc as I live in Dubai now) and she did an US and told me i have PCOS
My question is how can i have PCOS as well, i am under weight lost about 7 kg recently no facial hair none of those symptoms....
She showed me the US and i saw for myself all the cysts on the outside of both ovaries.
Got no treatment but to continue on a stronger birth control to prevent break through bleeds. (thats for the endo) what about the PCOS?
I am so confused as she said we will deal with it when i want to have kids. Well i am now 30 but not in a position to have children now but with all of this it sounds impossible.
Can anyone give me any advice as to what to do?
Does this sound like an accurate diagnosis to anyone?