Uncurable???

[Stacielynn369]

Im a 20 year old female who was diagnosed with Polycystic Ovarian Disease(pcod) when I was only 18. All my doctor gave to me was the name and a piece of paper with information on the disease. I have hair growing in odd places that they should not be growing on a woman, but its not bad. I have pains that are hard for people to understand what I am going through. My periods come whenever they feel like it, maybe every month or maybe every 3 months. And I cant seem to control my weight. When I turned 19 I was off my parents insurance and could not afford my own. I try to find outside sources to help me with my problem and different answers keep popping up. I was told not to eat chicken because of the hormone imbalance(higher testosterone), I was told not to eat dairy to stop me from gaining weight, but to eat veggies and fruit all I want. Its a hard thing to do when the only meat I eat is chicken, and I dont like alot of fruit. They also say to put caster oil on my stomach every night for a half hour and that will shrinken my cysts. I almost dont know who to believe anymore. I am getting to the stage were I want to have children and  I am deathly afraid that I may not be able to have them. PCOD is the number one reason young women are infertile. I know nobody here is a doctor(or maybe you are) and im not looking for a miracle, im just looking for people with the same problems to help me along this annoying journey in my life. I want to know who out there has this disease and had children after they were diagnosed? Who has any helpful hints that could help me to overcome this syndrome, or weight gain, or hair removal, or pain?
Thanks to everybody
Stacie

[Powers555]

Hi :-)
You are in the right place!!! Yes, there are lots of people who become pregnant and have pcos. I have pcos along with Adult onset non-classical CAH so I have two things to work against. It's a long road to conceiving, but definately possible.

Don't borrow trouble by worrying. It won't solve your problems. You definately need to go see a doctor so you can regulate your periods even if it cost a little. Are you in school, working. Is there any way you can get insurance?

[Powers555]

Hi again
I did not realize that you are in Livonia.
If you are willing to travel to Ann Arbor (right near Briarwood Mall on State St- Briarwood building #1), you should check to see if your insurance will cover U of M doctors.
I highly recommend Yolanda Smith (she is my Reproductive Endocrinologist). She is on top of things and when one thing does not work she trys another asap.
She's the best!!!! :-) and all of the nurses there are wonderful :-)3
734-763-4323 (office phone #)

[debdawn1027]

Relax, there are A LOT of us with PCOS (or PCOD). I had the same issues you are having, and I am 38 - been dealing with it since High school. Finally found out that other hormone levels were off, and once we got that in order with Rx, things are going well, and we are keeping out fingers crossed for this month/cycle. With my PCOS my prolactin levels were high, and progesterone low, understand the hair issues, weight gain was a big one, etc...(Actually they checked my thyroid several times). If you can get insurance through your college - some offer it to students, find a Dr. And I am sure if you can get to Yolanda Smith that Powers555 mentioned, they would run a blood panel on you, and help you get on track. It is definitely something that is controllable, and I have SEVERAL friends with it that have happy healthy children after being diagnosed.