I benign recurrent cholestasis ( Sammerskilla syndrome) . Sick 16 years , I am now 38. I am looking for people with the disease . I am looking for specialists in this disease. I shall be glad to all.
I live in Russia.
***@****
I benign recurrent cholestasis ( Sammerskilla syndrome) . Sick 16 years , I am now 38. I am looking for people with the disease . I am looking for specialists in this disease. I shall be glad to all.
I live in Russia.
***@****
Hi,
How are you? Benign recurrent intrahepatic cholestasis (BRIC) is indeed a rare form of hereditary cholestasis syndrome. It is often characterized by repeated self limited episodes of pruritus and jaundice. It recurs but occasionally leads to progressive liver disease. The key to treatment is relief of symptoms and the pruritus. Plasmapheresis or MARS (Molecular Adsorbents Recirculation System) can be considered in refractory cases while liver transplantation can be indicated for intractable pruritus especially if it progresses to progressive familial intrahepatic cholestasis. Take care and do keep us posted.
Hi,
I also have been diagnosed with this condition. I cant find much information on the illness and am currently seeing a specialist in Sydney Australia. I am amazed that I have found someone else with this disease, its very rare!
Would like to hear more about how you are getting on and to hear more about the condition itself.
Regards
Jen