Hi,,,,EDS is not a rare condition and many times is linked to conditions like POTS and Chiari Malformation.....
May I ask why you feel it is EDS if not yet DX'd?
Do you have many of the indicators for EDS?...Blue sclara, soft skin, easing bruising, slow to heal?...Hyper mobile joints?
I also have it and we do have a EDS group here on MedHelp....
http://www.medhelp.org/forums/show/417?camp=msc
As for the breathing issue it could be your ribs dislocating....mine do it all the time....and they have popped out while sitting still....I do not find I have a breathing issue with it, but it hurts like heck when it happens....