Aa
Aa
A
A
A
Close
Avatar universal

Ehlers Danlos - back cracking?

EDS (Ehlers Danlos) question:  while sitting still, I can breathe and my back cracks.  Is this related to EDS?  I haven't been diagnosed yet.  I start the process with a geneticist on 11/24/2014.
2 Responses
Sort by: Helpful Oldest Newest
10158664 tn?1408226761
I was diagnosed with Ehlers-Danlos Syndrome in September or October of 2012;  I had an ultrasound of my left shoulder which revealed a number of issues;  one of which was a torn rotator cuff,  and some torn ligaments and muscles, etc. Then the Rheumatologist told me that I needed to go see a Ortho-paedist for treatment. He also stated that I had Ehlers-Danlos Syndrome, and he said that I had laxity (double-jointedness) in the joints. I also get told that my skin is very soft, and I've noticed
Helpful - 0
620923 tn?1452915648

  Hi,,,,EDS is not a rare condition and many times is linked to conditions like POTS and Chiari Malformation.....

May I ask why you feel it is EDS if not yet DX'd?

  Do you have many of the indicators for EDS?...Blue sclara, soft skin, easing bruising, slow to heal?...Hyper mobile joints?

I also have it and we do have a EDS group here on MedHelp....

http://www.medhelp.org/forums/show/417?camp=msc

As for the breathing issue it could be your ribs dislocating....mine do it all the time....and they have popped out while sitting still....I do not find  I have a breathing issue with it, but it hurts like heck when it happens....
Helpful - 0
Have an Answer?

You are reading content posted in the Rare Diseases Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
New study links cell phones to slightly increased cancer risk. Should you be concerned?
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.