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help to find any rare disese tht might match these symptoms

52 yr. old white male lost over 100 lbs in 8 months,1,swollen lymph node in groin ,biopsy in 5 nodes no malignancy.complete loss of appitite,extreme fatigue,all major organs look good ,2mm cyst on kidney, no fever, no elevated white blood cell, no sign of infection, pain in lowerleft side ,prostrate good,colon clear- no problem with liver, stomache, heart,gall bladder good  cat scan shows nothing blood tests show nothing -1 1/2 year ago he went to mexico, he also took a cruise to mexico.9 months ago. he was also bitten by a dog last year, he lives in a rural area but it is not lyme disease.no diabetes,no high blood pressure. He went from 260 lbs to 162.  are there any infectious viruses or diseases that have these symptoms. He looks like he is dying he can no longer work, for the past 2 months he has been back and forth to doc, he was in hospital 7 days still no diagnosis  help!!!!
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Avatar universal
Have they tested you for Sarcoidosis?  It is a rare autoimmune disease that affects the joints, lungs, other vital organs, and lymph nodes are usually swollen in multiple areas especially in the neck region.  Just a suggestion because I my daughter was finally diagnosed 2 years ago but has suffered with the symptoms since her Junior year of high school in 2010.  Unfortunately she is still symptomatic and the disease has never went into complete remission.  There is very little information on Sarcoid  so I just keep researching in hope to find an answer and relief for my 23 year old baby.
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Avatar universal
Has he tried doing a course of antibiotics to see if that helps relieve his pain?

A lot of tests have a lot of false negatives (especially Lyme Disease), so he very well might have one of the diseases he's been tested for.  www.lymedisease.org

While no one wants to be a guinea pig, at a certain point, if he keeps getting worse, then I would consider signing a release form and begging your doctor to try different solutions.

I'm assuming that he's already doing everything he can at this point to save his life--diet, exercise, etc etc.  (I just wrote another post on this.)
Helpful - 0
168348 tn?1379357075
I was going to suggest thyroid, too .... what are his TSH T3 and T4 levels .. feel free to stop by the thyroid community ....

Where was the lymph node ... ?

C~
(Co-CL Thyroid)
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Avatar universal
I also have sarcoid.  When I first got sick no knew what it was.  My lymph nodes swollen all over my body.  I lost an unreal amt of weight and could barely stay awake.  I went to doc after doc and only one at NYU found the cause.  I hope your friend finds out soon the cause of his symptoms.  I believe he may have an immune suppressing disease.  Has anyone tested his thyroid?
Helpful - 0
Avatar universal
Was the swollen lymph node biopsied for lymphoma?  Has he been checked for sarcoidosis?  I am not a doctor but I have sarcoid and I know it causes swollen lymph nodes,loss of apetite and extreme fatigue.  I hope the best for your friend.  You must be out of your mind with worry.
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