Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Recurrent Bronchogenic Cyst
by ChristineRE, Sep 01, 2008 12:21PM
I am trying to find a doctor who has experience with recurrent bronchogenic cysts.
My 8.5 yr daughter has had chronic respiratory infections/pnuemonia's since 10 months old. At 5.5 yrs a bronochogenic cyst was finally found as the root cause. She had a left thoracatomy to remove most of it. A little over a year later, she became symptomatic again. The cyst was growing back. Last summer, at age 7.5 yrs, she had a 2nd thoracatomy, again most was removed. A followup MRI earlier this summer shows the cyst is now growing back a 3rd time. She is not symptomatic yet, although it is is slightly compressing the left airway again. The current plan is to watch her clinically. I want to be as prepared as possible when (if) she becomes symptomatic again. I am desparate to find a doctor who has experience with recurrent bronchogenic cysts, medical techniquest to get rid of the cyst without surgery and/or a surgeon who knows how to remove the entire cyst so it can't grow back.
Any help/direction you can provide would be must appreciated.
Thanks -
Christine Eichhold
My 8.5 yr daughter has had chronic respiratory infections/pnuemonia's since 10 months old. At 5.5 yrs a bronochogenic cyst was finally found as the root cause. She had a left thoracatomy to remove most of it. A little over a year later, she became symptomatic again. The cyst was growing back. Last summer, at age 7.5 yrs, she had a 2nd thoracatomy, again most was removed. A followup MRI earlier this summer shows the cyst is now growing back a 3rd time. She is not symptomatic yet, although it is is slightly compressing the left airway again. The current plan is to watch her clinically. I want to be as prepared as possible when (if) she becomes symptomatic again. I am desparate to find a doctor who has experience with recurrent bronchogenic cysts, medical techniquest to get rid of the cyst without surgery and/or a surgeon who knows how to remove the entire cyst so it can't grow back.
Any help/direction you can provide would be must appreciated.
Thanks -
Christine Eichhold
Post Comment
Related Communities
Recent Videos
Related Expert Forums
Recent Activity
Most Popular Trackers
RSS
Expert Activity
Community Members
Most Viewed Health Pages
