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726888 tn?1240850814
hlhs breathing disorders, with hlhs
My son is 4. Hes had the 3 surgeries for HLHS an one extra for his pulm. artery repair. HIs left lung was shut down for 3 years. Now there is blood flow to the lung but, His left lung is stretched an has spots on it. He just had a sleep study done. His sats should be high 90's since hes had the completion of staged surgeries. but during the study he didnt reach any higher than 80's they put him on 2 1/2 liters of oxygen but his sats. didnot go up. he stayed around 84%. i am still waiting on the other results. i hope to have them tomorrow.. they told me his lung is a very "sick" lung....  any ideas or thoughts i would appreciate..
kristy
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