Orbit and MRI results

[Sidesteps]

My results were completely 100% normal. I have an unremarkable brain! LOL ~

The good news: I do not have any obvious lesions. The bad news: I am for sure in limboland.

I have a repeat VEP on Wednesday then I meet with my doctor for going over my MRI and follow-up. She indicated that if these tests come back inconclusive that she would refer me up to a specialist at Swedish Medical Center in Seattle for my vision issues. The only thing that came up on my MRI was TMJ, a bone spur and abnormal signal in my bone marrow. I'm not sure what that will do for me.  I suspect she is going to refer me to a Rheumy and possibly another time of doctor as well. She already stated she wanted me to see a Rheumy.

I'm feeling mixed emotions. I looked at my MRI images (they gave me them to me yesterday and they looked enhanced in areas on my optic tract.) I dunno. I guess, I will just keep moving forward and address things as they come. That's easy this last few weeks as I've felt better recently - still having issues but they are ignorable. :)

Thank you for the support y'all.  At the moment, I am wondering where I belong... I know you guys get that.

[Sidesteps]

@Nikodicreta,  no, I do not think I've been tested for that. Thank you. I will do my research. Truthfully, when all this started (because of the way it started) I really thought it was a Cipro reaction. I have been on Cipro countless times due to all the UTI's I've had and I started with peripheal Neurological symptoms and twitching. I am open to anything. It was when I had difficulty swallowing that I began to question the symptoms more. I am not sure what will happen from here but I am glad I have double insurance!! :)

@Sarah, Thank you, yeah, I am struggling a bit. I want to believe in the expertise of health care community so I had a little mental talk with myself yesterday. :)  There are a couple things I know about the changes in my health. 1) That I'm not imagining them. 2) That I am in the very early stages of it since this all start a year ago. There are many who have had to wait for everything to just "come together." I had a couple super doctors explain that "sometimes we just have to wait for it to get worse."  Kinda sad to think of it that way but I am confident this is a waiting game. I'm just going to try to live my life the best I can...like you! :)

I know they can't rule out MS as it could be that the lesions aren't saying "HELLO! I'm here!" I have a couple extremely suspicious areas that are reflected in ALL of my MRI's they are just not enhanced...more hazy areas. (One image is on my profile page.) I have so many classic symptoms...It really looks like a missed lesion like Dr. Q mentioned in one of her posts where she even pointed out to her doctor's this "spot" on several different images and they continued to say it was nothing. I think that is what is happening here. I realize just having a couple suspicious areas isn't enough though.

So, I will plan to talk to my doctor more about my history and these specific images when I see her in a couple weeks. Swedish Medical Center will have better imaging techniques and might pick up on things easier. We shall see. I haven't seen her yet so she very well could look at the images and say "I am not convinced I'm not seeing something there." as she did the last time. (What do Neurologists do if they see something questionable on the MRI that wasn't noted?) I also still have my repeat VEP which was very wanky the first time. I'll just continue my path and try to figure out my Neuro symptoms.

As long as I'm still having symptoms of neurological challenges I'll continue to push forward in this direction. That's all I can do. :)

[sarahw244]

UGH!!!  It is all too easy to say, well at least your test results are normal.  But that sometimes only makes it worse, you know?  How can all this stuff be happening and  something not come back abnormal?

But...at least you are feeling better, which is awesome!!!  On the bright side, maybe that specialist will be able to find something that the neuro doesn't know about.

I really do hope you are doing well!  It is so hard to hear "your tests are normal/inconclusive/negative.  You are right, we do know all too well ;-(

Big Hugs to you!!!!
Sarah

[TheLightSeeker]

Hey Sidesteps.
Wow!
CTs, VEPs, MRIs, some 100% normal, some repeated, some inconclusive and now more
specialists, more tests. Limbo Land for sure.
Have you been tested for Pathogenic Mycoplasma Infection? This is very suspect!
Here's a list of the symptoms common to Lyme Disease,Chronic Fatigue Syndrome/Fibromyalgia, Multiple Sclerosis and other undiagnosed conditions associated with Pathogenic Mycoplasmas.

Insomnia, vision changes and eye problems, headaches, shakes, chills, fevers, numbness, burning, tingling, electric shock feelings, neck pain, muscle and joint pain, jerking and twitching of limbs and muscles, restless leg syndrome, spasms, cramps, fatigue,  muscle weakness, balance problems, abnormal anxiety, depression, acid reflux, etc.

Any one person will not have every single symptom.  Everyone's symptoms differ in severity, the number of symptoms  and what body systems are affected.

Unfortunately there's very few doctor's that are familiar with the testing.

The specialized test to verify the presence of pathogenic mycoplasmas is the
"Polymerase Chain Reaction Test" which seems to be the ultimate test for this.
And not too many labs are able to produce accurate and reliable results.

Please do research this carefully as it may apply to you.
There are thousands of people suffering unnecessarily with multiple symptoms and difficult
to diagnose conditions, because of a pathogenic mycoplasma infection.
Mycoplasmas can hide undetected in the body for years.
Should you need more info please post again or message me directly.
Hope you find the answers that will help you resume a "normal" life again.
Blessings,
Nikodicreta

[jibjen]

Hey sweetie,

Well that's good no lesions...Looking at those images can give you a headache, Sorry no true answer yet but good you are feeling better and you are still being treated pro-actively and going for more tests...onward...

It is so true we understand what you are feeling.....all to well.

Take care
Jibs