Post stroke syndrome and fibromyalgia

[Danly]

I m dignosed with post stroke syndrome/central pain syndrome recently. Suffering both post stroke pain and chronic fibromyalgia at the same time that has made my life miserable. I get daily migraine tension type headaches, burning pricking numbness pain, stiffness and bad muscle spasms. Amitriptyline,  cymbalta, baclofen gave me bad side effects. I m hoping someone can share their success with other drugs. I m willing to give it a try.

Thks in advance!

[Danly]

Hi sara,

I have failed withdrawing from my medication as the withdrawal side effects are too much to bear. My post sensory stroke pain on one side of my body worsen till I m unable to make a single move.  I suspected the muscle spams and nerves inflammation are overwhelmed. I m basically screaming in pain daily.  My stress level has reached the max causing me to cry most of the time. I m thinking of adding nortriptyline (pamelor) to my medication but still waiting for my neurologist to prescribe on my next appointment. Crossing my fingers it may give some relief.

[sara12345]

I'll look forward to hearing how going off of your medications goes for you.  I hope that you can go off the benzos very gradually to avoid the withdrawals. Really hope that your pain gets better.

[Danly]

Hi sara,

Fyi, my headache and numbness pain (cps) on my body has turned super chronic for the past one week. My neurologist decided to wean me off  tegretol and lorazepam. I will also be cutting off my lyrica soon after my tegretol and lorazepam. I m now preparing to go through withdrawal days while not intending to try anymore new anti depressants as most of them made my condition worst base on my experience and after a some thoughts. I hope I will be able to lead a new painless life without medications. Will keep you posted. Take care.

[sara12345]

Not sure what you mean by pressure from your partner.  If you feel like going into it, I may be able to help.  I'm glad that you are continuing to try to get better medical help. Let me know.  You take care.

[Danly]

Thanks sara. I will not give up on trying other medical treatment as well as continuing my benzo.  I believed my pain is partly contributed by my stress, anxiety and depression as I have been getting pressure from my partner indirectly but I m staying strong and positive to overcome all my problems and hopefully with less stress and new medication, my pain will be better controlled. Will keep you posted.

[sara12345]

I find it a bit strange that the doctors don't want to prescribe you anything else because you are only taking Tegretol and Lyrica.  Have those 2 meds helped you at all?  You only mentioned about 4 medications that you couldn't tolerate.  I don't see what the big deal is with you being on benzos if you're hurting so much.  What about Butrans patches which give a low level of opiates which have kept me out of the ER with my migraines?  The Botox injections may not help your post stroke syndrome/central pain syndrome, but the injections could help your migraines.  There is absolutely no medication that goes into your system at all.  It is all local. You can certainly try the CBT and hypnotherapy, but don't give up trying with other medical treatments.  Keep trying to find better doctors.