Is it possible to have Graves and Cushings

[bhoysbabe]

I was dx with Graves a few months ago though symptoms just keep getting worse,
endo had me do 24 hr urine test 2 wks ago along with a another load of blood
tests. Still don`t have any results but she did tell me she suspected pituitary
tumor which scared the life out me.
Earlier today I decided to bite the bullet and google, it all fits with Cushings
even got the buffolo hump , actually noticed it last wk but didn`t know if it
was another Graves symptom as also now got lumps all over shins (pretibial
myexedema). The weight gain (massive) and its all trunk area, back pain etc.
Has anyone else had this, can you have both? I`m at wits end now, also
needing colon resection due to diverticular disease....does this mean more
ops lol brain,throat, bowel ain`t I the lucky one.
I posted before about the pretibial myexedema, had 6 docs round me and
they took pics......am feeling more and more like a freak.
I`ve absolutely no quality of life anymore, my family don`t understand
they just think I`m moody and awkward and to be honest apart from my
daughters I feel so alone, I don`t want to be a burden and to be honest
thats exactly what I feel I am, friends are disapearing as I can`t stop bloody
crying or I`m losing the plot at silly stupid things. Can hardly move with joint/back pain.
I`m hoping someone can help.......Please

[bhoysbabe]

Hi my test results are now in doctors...........but they wouldn`t give me them over
phone so looks like I`m gonna have to wait till Monday after all.
The scan makes sense now thanks, I`ve had quite a bit pain there funnily
enough but put it down to bowel disorder, even though my surgeon said it
was too high to be my bowel, he did however write to endo about it as there
is a swelling just near my rib cage, my gp (ex) told me last yr it was cartilige??
At least I`ll know some more next week :-)
My daughter coming tonight and we are having a bbq while the weathers good
so I`m looking forward to that, just need to find something other than jogging
bottoms to go round my stomach...............and my newly aqquired 40DD bust
was 34C in Feb lol and can honestly say I will never again moan at 34C I want
them back lol.
Have a good weekend x

[Smilerdeb]

It looks like they are going to check your Adrenal glands that can help in determining if you have Cushings Syndrome.
Usually if growths are found on the adrenal gland, they are either removed surgically or shrunk by medication.
The adrenal glands are usually just under the abdomen near the kidneys.
No big deal if tumours or growths are found there but they need to be treated if this is what they find.
Excess hormones are released if there are growths...usually cortisol or testosterone.
Let us know how you go :)

[bhoysbabe]

Hi hope you had a good reunion :-) Just an update......still not got results
but I got letter today from endo saying I have to go for an abdominal
ultrasound on Wednesday??
I`m more confused than ever now lol, I`ve had CT scans for my bowel
this year already, it does say full abdomen.........don`t know if that makes
difference.
Just wish I could get my hands on results to get some clues, its getting
crazier by the day. x

[Smilerdeb]

Thankyou for your kind words...I think the first night was actually the worst....I am ok now knowing he will be home tomorrow lol.

Didnt anyone ever tell you that stress is the biggest reason for excessive Cortisol?
It would help you immensely writing things down as I have kept a thyroid diary for the past 2 years and when I read back on it...its like I am reading someone elses words.
Keep writing things down...write out a list of questions and hand them to your Doctor.
Nine times out of ten we tend to walk out without really asking what we want to know and hence the vicious cycle of stress fires up again with anxiety.
Keep me informed as to whats going on.
There are so many people here who will support you all the way.
I post here more than Ive ever confided in my family...as Medhelp is my family when the going got tough for me.
AR-10 was my first encounter and his advice I could never ever repay as he kept me sane when all hope was lost.
Many others have kept me sane too on my 'journey' and thats why I stay here to help others who are just starting their journey as I know that thyroid issues are a very lonely place to be when family dont understand and even when we dont understand either.
Let me know how you go.......I am curious as to whther you can have Cushings with Graves.

[bhoysbabe]

Hı hope you got through the nıght ok wıthout Robert and that tıme passes
quıckly for you tıll Thursday and you see hım agaın
Bıg hugs
Unfortunately although my results are now at my health centre I have
to see my doctor to get them whıch scares me a bıt as they are normally
ok gıvıng them over phone
Anyway as my luck would have ıt.......no appts until Monday lol.
The sun is shining today so I`m gonna do some gardening to keep my
mind of it.
Its so frustrating isn`t it, all the waiting to be "stable" lol.
I`ve fiiled in the form doc gave me as to my mood and added 2 A4 sheets
with a story stating I`m only depressed/anxious because of my condition(s)
and even if I could have my bowel surgery at least that would be one thing
out the way, I actually feel a bit better getting it of my chest lol dunno if doc
will feel that way after reading it.
Thanks again for support, I`ll keep you updated. Hope you are not feeling
so lost today without Robert......................think of the big reunion tomorrow
:-). Hugs xxx

[Smilerdeb]

Hang in there....tomorrow is just another day away.
I dont really know if its possible to have Cushings and Graves...I'm not qualified to answer that.
But I do know that the Carbimazole can send you on a rollercoaster of hypo to hyper and vice versa depending on the dosage and just how sensitive you are to the medication.
I look back to the days when I was the same as you and can feel your pain.
That was only a year ago and a lot has happened since then.
If I can get through all this (and I am by no means a strong person) then you can too.
There are so many here to support you and if I was living near you, I would come over and give you the biggest hug.
Feeling a bit 'lost ' myself the last few days as my boyfriend (My Angel) is away until Thursday and even though we both have our own places to live, he has never left my side since I was diagnosed with Graves so having an empty bed has really knocked me for six this time.
I know my levels will be out of whack this week when I get them done and feeling 'lost' without Robert by my side.
I guess we all take a lot of things for granted and sometimes forget to 'smell the roses'.
I will be glad when hes back on Thursday and in the meantime...let me know how you go with the Doctor.
It is so easy to get 'caught up' on the internet looking up symptoms and the the mind 'running away with itself'.
Its the 'hyper' thats doing it to you so take a big deep breathe and know we are all beside you , if not in body then in our thoughts.
Its very hard to get through all the thyroid issues but knowing you have support and knowing you can come to this site when no-one else understands makes it that little bit easier.
Be kind to yourself and think POSITIVE.
Its Tuesday night here ...I will be here tomorrow morning so let me know how things go xxx

[bhoysbabe]

Results are lost in internal mail, have to call tomorrow, endos secretary won`t
give them out over phone. Ah well tomorrow another day :-(
Doc gave me a questionaire to fill in regarding my mood lol

[bhoysbabe]

I`ve phoned a few times but results not back yet, cortisol levels were up in blood test
so endo took about another 10 more and I did both saliva test (positive) and 24 hr
urine (not back yet) endo did say they were looking for pit tumour?
She put my carbimazole down to 10mg from 30 to see if it would help my stomach,
she also thought I could be hypo  but I`m not I`m still hyper TSH back to 0.002.
I`ve got appt this morning with my own doc though he says the results will go to
endo but I`m seriously ready to flip, I`m getting more deformed by the day, stomach
is so swollen its purple and it looks horrible, I`ve got milk leaking from my breast
and had full hysterectomy in 2000.
I`ve been on steroids (prednisalone, azithyoprine (sp) lots of times due to crohns
disease and last yr had approx 15 cortisone injections in wrists, elbows and shoulders,
also had biggest load of stress at that time I`ve ever had in life which came up a lot
when I googled pit tumour.
Thanks for getting back to me, hopefully I`ll be same as you and won`t have Cushings
fingers crossed, is it possible to have both? I`m so mixed up I`d cut myself open
and operate on myself if it gave me answers, I`m wondering now if maybe I don`t
have Graves even though had the antibodies, truly hate myself and my deformed body
just now.
You`re a star btw xxx

[Smilerdeb]

You sound like you are HYPO.
I was tested for Cushings Syndrome in 1985 and never went back as I was going through a bad marraige.
But I did test for Graves 3 years ago and suspected I had it many years.
The swelling is caused by being Hypo and so too is the large weight gain.
Tears and crying and anxiety can be felt when both Hyper and Hypo.
As we get older , we all tend to have a 'lump' at the back of the neck on the back....it is mainly due to incorrect posture.
I too...am a victim to old age lol.
You had tests done 2 weeks ago. Maybe you should call and find out the results.
Docotrs can give you results over the phone.
When I was tested for Cushings, it was with urine and blood test (like a diabetic ) is tested.
I had to wait an hour and then be retested then wait another hour etc and sent home with a 24 hr urine bottle.
I have since been retested for Cushings as I too gained massive weight and had a 'moon face'.
my tests came back negative.
I hope that puts your mind at ease.
Although the sooner you ring for the results, the more your mind will be at ease.
Hugs xxx