SOS!

[Juile]

I am so frustrated with my medical journey leading nowhere, I started feeling really lowsy 6 months ago, lost lots of hair, brittle plummer looking nails, can't sleep despite being totally fatigued, no libido,weight gain, much worse asthma blah, blah, blah..First endo said my TSH was low 0.4 and to go to a thyroid endo, was on Prednisone for astham so he said nope it's toally from your steroid use and THEN decided to palpate my thyroid and gelt a goiter. My mother had total thyroid removal at 34 and Cushings as well so we are not good endocrine folks..Had a radioiodine reuptake which said normal then the ultrasound came back with mulitnodular goiter and cyst's so somehting IS going on. Everyone want's to just sit and wait and monitor the nodules since of course my labs were "normal"-no antibodies and nothing to remarkable excpet for the fact I feel like I could die sometimes from all the astma getting so bad and my nails falling off. PLEASE any insight would be helpful since no one want's to treat me and watch and wait-ugghhh..

[loonette]

Hi,
Sounds like my condition pre-TT.  Look at my posts for the rollercoaster ride of your life.  We all have one.  Thyroid issues definitely run in families.  Are you on thyroid meds since they have discovered the goiter (been there too) and yes, they do like the wait, watch and see approach.  I did too.  No one wants surgery when a biopsy will do, but with a multinodular goiter it's kind of hit or miss.  Do they recommend doing a fine needle biopsy?  If the goiter continues to grow after medication, surgery is probably next step.  Medication is first unless biopsy shows some definitive results.  Mine didn't so we waited.  TT 6/24/09 RAI 9/11/09.  Goiter first discovered in 2004.

Good luck and get copies of all lab/US/path reports and remember to post reference ranges of bloodwork for members to comment fully.

[Smilerdeb]

bumping this up for others to post............