TSH climbing again, why?

[KayMD]

All: Thank you ahead of time.

I have been concerned about my recent TSH result. I was Diagnosed on May 14, 2007 with Autoimmune Thyroid Disease. Following were my initial labs"

Thyroglobulin (0.0-14.4 IU/mL) 37.4
Thyroid Peroxidase (0.0-3.9 IU/mL) 270.7

Free T3 (2.9-4.9pg/mL)       2.8
T3 Uptake (25.0-38.0%) 27.5
TSH .80-5.60 uIL/mL 27.96

Was put on 50mcg Levothyroxine and retested on June 12, 2007. Only Free T4 and TSH were tested this time.

TSH 10.29
FT4 (0.75-1.54 ng/dL)  1.2

Was put on 75 mcg and I retested on July 12, 2007. This time only a TSH was done.

TSH 3.41

My Dr. thought this was fine. I requested an increase. She increased it to 88 mcg and I retested on September 14. This time she tested TSH and FT4 again.

TSH 4.77
FT4 1.54

She again thought this was fine. I requested a dose increase. She increased to 100 mcg  and I retested on November 14, 2007. As far as I know, she only tested TSH.

TSH .08

I was beginning to feel great. Many of my hypo symptoms were resolving, and I was feeling very pleased and hopeful about treatment.
However, she said this was too low and decreased my dose back to 88 mcg. I didn't exactly follow her advise. Instead I took 88 mcg 4 days per week and 100 mcgs 3 days, (as I had enough 100s to get me through until another testing.) On January 1, 2008 I retested. She tested my TSH and FT4, but she only told me my FT4 was "normal" not what it was.

She said my TSH was between 12 and 13!!!

I am demoralized and frustrated.
A week or so after I dropped the dose from 100 mcg/day to 4 days@ 88 mcg and 3days@ 100 mcg, I began getting severe hypo sympyoms again. I guess a TSH between 12 and 13 explains that. Yesterday, she increased my dose to 5 days@ 100 mcg and 2days@ 88 mcg.

My questions to you are what in the heck happened to cause such a drastric increase in TSH?
Is a dosage increase of 25 mcg/week likely to effect sufficient re-lowering of my TSH?
What in the heck can I do to get my Dr. to keep my TSH under 1, where I felt the best!  
Should I be seeing an Endoctrinologist? Should I ask for a referal from her, which is required by my insurance. Is there something I can bring for her to read that will be short, but which she will respect and not be offended by.

Thank you for any help you can provide.  

[kcmigs]

Welcome to the roller coaster.... up & down...  hoping one day to find the match where XXX mg of whatever medicine equals Euthyroid...

Euthyroid:  the state of having normal thyroid gland function. As opposed to hyperthyroid (overactive thyroid) and hypothyroid (underactive thyroid).

Hypers & Hypos we have a lot in common.

[ifupleze]

You should stick with the same dosage throughout the whole week.  If you keep self medicating, you are never going to get your TSH leveled.  I'm not scolding, just speaking from experience.  I did somewhat the same thing, increasing my meds when I should not have and really screwed myself up.  I went from hyppo to hyper, quit my meds and went back to really hypo.  Now I am following my doctors orders and hoping to get to a consistent TSH level.  It takes weeks for the body to adjust to one consistent dose much less mixing it up.  Although, I have heard of people doing two different dosages every other day hoping to get somewhere in between the two.  It sounds like you were on the right track at 100mcgs.   Anyway, I would stick with a consistent dosage until your next blood test.  Good luck.