Our daughter is over your way now. She starts school in Glasgow in a week. Caledonia Univ.
Hi Trish,
Thanks for your reply,
I live in the UK. I understand the normal treatment here to be:
Total Thyroidectomy, I131 followed by full body scan, 6 month post treatment, I131 with full body scan, then if that is clear, follow up with Thyroglobulin tests 6 monthly for a few years, then anually for life.
I believe my scan was the last unless the Thyroglobulin rises.
I was diagnosed November last year, I131 (3700mbq) with full body scan in February this year and the I131 (182mbq) with full body scan two weeks ago.
I have no parathyroid issues and take 250mg of Levothyroxin daily.
Take care,
Heather
Heather, I was diagnosed in March 2006 and had TT May 2006. My most recent scan was April of this year. It was clean. I will have either whole body scan or Ultra sound next April, and every year I understand. I feel fine now, just have to take calcium supplements because of parathyroid issues, along with synthroid.
Trish
Many thanks for your reply.
Yes I did go on the LID and off the thyroxin prior to the scan. I have never had thyrogen though.
I had the scan results on Wednesday 3rd and I was told that all the thyroid has now gone. So I am now in remission. Yippee!!
I asked if I was cured and the oncologist said they would never be able to cure me, I may live the rest of my life without having the cancer return, or I may have recurrances, so they will keep a check on me for life because thyroid cancer has a long natural life and can remain dormant for many years.
How are you doing now?, do you have to have any more scans? How long since you were diagnosed?
Best of luck,
Heather
Did you go off your meds and on the LID prior to your most recent scan? I was on the LID for my 3 scans along with Thyrogen each time.
Many thanks for your comments.
I did not have Thyrogen for the scan, I have never had thyrogen for any treatment.
Kindest Regards,
Heather
I had my thyroglobulin test the morning of my scan, after taking 2 Thyrogen injections that week. Did you use Thyrogen for your scan? If so, it does what going of your synthroid would do.
You do not need to stop medication for a thyroglobulin test.
It is a blood test to measure thyroglobulin (which is produced by thyroid tissue). Whether or not you are taking thyroid meds will not matter. The only thing that can mess up the test is if you have Thyroglobulin antibodies.
They usually test for antibodies at the same time as they check for Thyroglobulin.