To Anyone with TN or Atypical Facial Pain!!!

[Spacey303]

Hey all, 2 weeks ago I was despondent and suicidal after suffering with TN (or "atypical facial neuralgia" in my case) for 7 months, many failed treatments, and no relief in sight. But I listened to my body and found a doctor who listened to ME (no small feat in and of itself!) and supported my belief that a chain reaction/perfect storm of muscle spasms, trigger points and "myofascial damage" were literally causing my upper-back and neck muscles to pull on muscles and nerves in my face -- thereby causing the horrific pain.

After one session of trigger point injections, I'm a new woman and most of my pain is almost gone! I have a long history of many major neck problems and surgeries...so this might not be a very common cause (who knew neck pain could make your eye and teeth hurt!?) but I wanted to put it out there as something for my fellow TN sufferers to consider -- so please think about whether this might apply to you! I know how indescribably torturous the pain of TN is and hope sharing this information might help even one person. If anyone wants to know more, feel free to send me a message.
-- S

[HeleenDestuyver]

Hi!
My name is heleen and i'm from belgium. I can't find good information on belgian sites, so i thought i might find it here.
I'm desperatly looking for an answer of my pain.
I think i have the same as you had, but i'm not sure. I will try to tell you my story in short..
Six months ago i got a viral infection, and since then it all got worse. I had some drama's in my life , someone young in my environment passed away very suddenly, problems at home etc.. I got very anxcious, depressive and started to show some hypochondric caracteristics.. I was so focust on all the negative and things in my body that i got many issues.. My neck started to hurt, and my throath. I did many examinations, they tested my blood, did an echo in my neck , but nothing was found.They always rejected me and send me home with painkillers. Months later, i was really getting in a black hole. My docter send me to a fysiotherapist, kinésist ( don't really know how you say it in english, i thing fysiotherapist..) She really helped me, and saw that i h ad some blockades in my neck. I had many triggerpoints in my neck, shoulder an jaw. I also had a disfunction in my jaw.. the sessions helped, but only for a few days,and then it came back. in my head i'm doing better now thanks to yoga , but the fysical pain is chronic. I have a really reallyunbairable pain .. In my jaw, deep in my ear, my neck, in my mouth, and sometimes headaches around my ear. And all on the right side of my face.. My bodytemperature is also a bit higher than before al the misery. It first was 36.7 now it's always round the 37.3 ..There aren't any painkillers that are working, so i have to live with the pain.After many searches i think i have atypical facial pain. And now is my question, if my symptoms are the same as yours? And if you can give me some tips or so, because sometimes getting up every day is a nightmare..And every help is welcome
Greetings from a desperate girl from a little country..
Heleen

[Todd121]

I have been a sufferer of TN for over 20 years some days are good some bad i am looking for people who shair this condition someone who can relate to the torment i am going through. I feel so alone and isolated ,to have somone there and to be there for someone i feel would be a big help.