Gwynn 724

[gwynn724]

Hello,
I have many medical problems, but the one(s) that are limiting me now are undiagnosed:

`Severe dizziness, almost all the time
`Unsteady gait
`legs feel weak, like they might give out
`Ocular migraines frequently when wake up
`occasional nausea and vomiting (rare)
`Feeling basically very, very ill.
`no energy, can't do anything

My PCP does not know what to make of this.  He did order overnight oximetry, but it was OK. He says it could also possibly be from CKD...I will see nephrologist in 3 weeks....but he has said that the CKD is not too severe.

FYI known issues are a pleural effusion with possible trapped lung and SOB following pneumonia,
CKD, diabetes, two mechanical heart valves, a pacemaker, RLS and PLMD

Any help you could give me, a direction to go in, would be greatly appreciated,

Gwynn724

[paperclip46]

Thanks Gwynn Let us know how you fare and what the Doctors discover?  Keep on keeping on until you are well!  All the best.

[gwynn724]

Thank you for your welcome and also for all that information!!!  

I am making a list of all of your suggestions to take with me to my next visit with my PCP.  Well, I may not give it all to him at once, just start with a few and then depending on the result, continue on.

I appreciate your giving me some direction as to what I should be looking for.  It is so helpful to be able to ask specific questions and request specific tests.  

Take care and thanks again.

[gwynn724]

Hi again, I didn't realize that you had also written the previous comment until I started to address this one!  Thanks.

It sounds like your daughter (and you along with her) have gone through an awful lot with her kidney.  I hope she is doing fine now?  

Thank you for sharing the information.  It will help me when I go to see the nephrologist.

Thanks again!
Be well

[gwynn724]

Thank you so much for taking the time to write back to me.  You are very kind.

As it happens, I already sleep with several pillows, perhaps bricks under the top of the bed would help and be easier to deal with than the pillows!

Be well.

[Dr. Kokil Mathur]

Hi
Welcome to the MedHelp forum!
I am sorry to hear that you are suffering so much. Yes, kidney disease, involvement of lungs and heart can together precipitate the symptoms and hence it is important to assess whether all is fine by kidney function, pulmonary function tests, EKG, ECHO and further tests for heart. If you have headaches and hot flashes and lightheadedness with a feeling of passing out, you could be having either polycystic ovarian disease or GERD with or without H pylori infection. These are the two conditions to be ruled out first. Other conditions to be strongly ruled out in your case could be cervical spinal nerve compression, Meniere’s disease of the ear, wax in the ear, infection of the middle or inner ear, benign positional vertigo and benign intracranial hypertension. Hence it is important to consult an ENT specialist and a neurologist too. At times back and neck problems may persist for years before they really start giving trouble. Chances of TMJ too should be looked into. Other causes are anemia, hypoglycemia or low sugar and some endocrine problems, such as an underactive thyroid (called hypothyroidism), overactive thyroid (called hyperthyroidism), adrenal insufficiency (called Addison's disease),  and in some cases, diabetes, may lead to hypotension and hence lightheadedness and an off balance feeling. It can also be an anxiety and panic attack. It is really difficult to comment on the net. I suggest you consult your PCP to run the basic investigations and get an insight into what could be the cause. Depending on clinical examination and tests, your PCP can refer you to the appropriate specialist.
Hope this helps. Do discuss this with your doctor and get yourself examined. Please let me know if there is any thing else and do keep me posted. Take care!

[paperclip46]

My daughter had a congenital malformation of one of her kidneys. We did not know about it whilst she was growing up but she was weakened and suffered from feeling nausea often but never sick.. She often succumbed to other infections.  Finally at the age of 25 yrs she had severe kidney infection and then after all the tests saw that it was chronically infected.  I am glad you are going to the Nephrologist  and hope that they give you the correct tests to sort out that kidney of yours. My daughter was given antibiotics but it was then too many years of infection and they had to remove it in the end.  So I hope  that you will make them very aware of your nausea and weakness and get it sorted out.

[paperclip46]

Gwynn I feel for you but I would not know how to help you but I would put some bricks under the top of your bed so you are not lying so flat at night. It may help.