Well, I'll try this forum. I've posted in ENT and EPV forums. I am still suffering from chronic dry mouth and throat issues. Set for yet another endoscopy on this Wednesday. I doubt that is the problem. I have had many tests, biopsies, CT scans, MRI's, etc. No definitive answers. Whatever I *don't* have is now chronic and getting worse and just about ruins my daily life.
I am beginning to think that this is not necessarily an ENT issue but has actually something to do with the *tissue* of my mouth and throat. My tongue, palate and throat are mostly on the dry side, add to that a feeling of something stuck in my throat (more like a wad of mucus feeling), but my mouth and palate feel not only dry but like I have a mouth full of paste and absolutely nothing I use or do alleviates this problem. It is so uncomfortable and it does cause me anxiety. I have searched and searched the Internet and cannot really find anything that describes my symptoms. I have had two (parotid and salivary gland) biopsies plus blood work for Sjorgens, which were negative.
I am really thinking there is something wrong with the *tissue* of my tongue, mouth and throat since the ENT docs really don't *see* anything bad, which is a good thing.
Any ideas? I don't even know what type of doctor I would consult with about this I go to the dentist regularly but he has no idea what the problem is.
Also, I cannot find anyone I know or anyone who knows anyone with the symptoms I complain about.
Help. :-( There has to be a cause for this. I am pretty much off all meds except for low dose Alprazolam (Xanax), which I've been taking for about 3 1/2 years. I maybe take 1/2 a .5 mg tab twice, maybe 3 times day.
I can taste but drinking coffee, colas, eating, etc, seem to make it worse. This is very uncomfortable and I often almost loose my voice. I've had a number of ENT docs look down my throat.