EBV-MAIDS

[mamaluv430]

My daughter was just diagnosed with Epstein Barr Virus-Mild Acquired Immune Deficiency Syndrome  She had mono when she was 16. She has had many sore throats, including Strep throat, pneumonia three or four times, severe bronchitis, etc.  She is 25 and a fine athlete, strong, fit, healthy except for these recurrant issues. She has begun monthly immunoglobulin injections because the ENT says that this condition can go into lupus, rheumatoid arthritis, or MS.

The doctor heard her complaints and felt sure that she had EBV-MAIDS. He is doing research on this at USC Medical School. He says there are 400 patients with this condition on monthly injections. To make the diagnosis he sent her to a hospital and had a blood panel done and sent to a lab in Utah for processing. It showed her Viral Capsid Ag (VCA)
lgG to be 1:540 where normal is 1:10 and Early Antigen (EA) IgG 1:40  where 1:10 is normal and Nuclear Antigen (EBNA) to be 1:20 instead of <1:5.   Do these numbers mean anything to anyone?  

This is the first doctor we have found who has any answer to what could be making such a healthy young woman so ill two or three times a year. But I can't find literature talking about this EBV-MAIDS except for his paper. Is it a real thing?  Will these shots for the rest of her life really help? We live in Los Angeles and are looking for a really good naturapathic physician to help her build her immune system as well. Please advise if you know of any one or any supplements.
Thank you and may you all grow strong and healthy.

[mamaluv430]

Thank you. I have posted on the EBV Forum and contacted PlatletGal.....Thanks for your help.

[Padro46]

Have not heard of EBV-MAIDS, Have you tried to contact some in the EBV Forum Try PlaletGal she is a good source